Scleroderma – Page 13 – Yarn, Books & Roses

When the going gets tough, the tough get… knitting!

This is it. I’m pretty sure that I am back. Right after Christmas I got sick with the flu, one thing led to another, and I was taken off the drugs that I take to treat my systemic sclerosis (scleroderma). Yep. My autoimmune condition flared of course. Two weeks ago I was finally cleared to start my immunosuppressant drugs again.

Hello energy! Wow. This week a surge of creativity arrived. I was up and pulling together projects right and left while cleaning house (and putting away the Christmas decorations). About freaking time, huh. My poor yarn stash had started to despair. The loom was considering contacting an adoption agency (that darn spinning wheel put it up to it. He has always been a trouble maker…). Even the car was becoming depressed.

My energy level has come up just in time. Three weeks ago my internist sat down with me and gave me some bad news: I have developed symptoms that suggest that my lungs are now under attack and becoming scarred. I kind of expected it as I have been having shortness of breath episodes, but still it isn’t a good development. I made an appointment with the rheumatologist. Yesterday I saw him, he decided to increase my drug dosage, and he also ordered lung testing for next week. When I came out the door from the clinic the wind was blowing, the sun was shining, and I was happy to be alive. No matter what happens next week, this week I am full of energy and feeling pretty good. Got to love these drugs!!

So I decided to not go right home. I went shopping!! Hello! The rheumatologist is located in a city north of Denver near a major yarn store, Shuttles, Spindles and Skeins in Boulder, Colorado. I have needs. The loom is making threats…

Home woven dishtowels — At Christmas my cousin admired my dishtowels. I want a couple more of the white/color checked towels, and she wants the towels with no white. Time to warp the loom, but I am out of the white and light blue cotton. There. That is a good enough reason to go to the yarn (and weaving) store. 🙂

I found the cotton that I needed pretty quickly. As I tried to walk to the checkout counter I happened to see the Dream Club kits…

The January Dream Club kit had this dreamy cashmere blend fingering yarn and a pattern to make cute mitts and a head scarf. The pattern is called Blue Jean Boheme (by Kalurah Hudson) and while I’m not wild about the scarf, I really like the mitts. I bet I can get two pairs of mitts out of this yarn. Maybe a pair of mitts and a pair of bed socks…

While I was thinking about the bed socks the happy colors of the February Dream Club kit jumped out at me.

I don’t know how those kits jumped into my arms. It just happened. Clutching the cones of cotton for the dishtowels and the bagged kits I managed to get up to the check out counter and found…

Isn't that the truth! — Isn’t that the truth!

Okay, I did find some more yarn to add to the pile, but I’m going to save it for a future post. I piled back into the car with all of my happy finds and headed south back towards home through some of the strongest wind in recent memory. Seriously, I was dodging tumbleweeds (while on an elevated overpass!) and playing chicken with wobbly tractor trailer trucks as I raced along through clouds of dust and howling 60 mph wind. It perfectly matched my mood of recklessly joyous living.

My last stop on the way home was at a jewelry store where I bought a new teal colored bead for my Pandora bracelet.

I am rocking the knitting tonight wearing my bracelet. This weekend I will get the warp wound for the dishtowels and the loom will get warped up early next week. You know I’ll be wearing the bracelet when I go for the pulmonary function testing next week.

I am tough. I knit!!

Bad Start, 2016 (but I made a great sweater anyway. Ha!)

I know that I kind of did this to myself. I was really pushing things as I got everything baked, stitched, knitted, wrapped, mailed and cleaned for Christmas. It was wonderful. My family was all here on the big day, the dinner was perfect, and it was even snowing lightly making it a true White Christmas. A wonderful, wonderful day.

I was just exhausted afterwards.

Still, I made some after-Christmas plans. I wrote out some ideas for the end-of-the-year blog post and made a list of projects to tackle in the coming weeks and months. Great stuff: weaving, spinning and quilting made the list along with the usual plethora of knitting items.

Cat Face — No New Year’s for us. Mom got sick.

The Monday after Christmas I woke up sick. Influenza!! I had had the vaccine, but I knew that it was unlikely that I would get the full benefit because of my immuno-suppressant drugs. By New Year’s Day I literally couldn’t get out of bed. The next day I dragged into the after-hours clinic and was sent home with antibiotics and some serious cough medicine. Thus a cascade of severe unhappiness was launched. Here’s the short version: bronchitis; removal from immuno-suppressant drugs; allergic reaction to the first antibiotics; more antibiotics; a full rebellion by my digestive system; low blood pressure; dizzy, dizzy, and more dizzy; help: I can’t even manage to knit; a flare of my systemic sclerosis; and a complete helping of why can’t I breathe right yet??? There. That was the whole month!! In fact, it is still going, but I am definitely on the mend.

Take home lesson: it is possible to survive on yogurt, cranberry juice and Christmas cookies. Maybe I should write this up as a new fad diet. 🙂 It is also good to have a pile of books waiting to be read. An emergency stash of chocolate is a given, right? Oh yeah, one more thing: GET YOUR FLU SHOT, PEOPLE!!

Two weeks ago I pulled out my partially completed Daelyn Sweater (by Isabell Kraemer) and got started knitting on it again between naps. Last week I finally finished it. Oh, my goodness. What a wonderful sweater. It kind of looks like a sweatshirt…

Sweater front — Do you know how hard that is? Ugh! Still, this gives you a better idea of how the sweater actually hangs. Once it is on it doesn’t look wide and boxy anymore because of the garter stitch side panels. My swollen fingers are due to the systemic sclerosis flare. I want my drugs back!!

Raglan Sleeve — and just check out the raglan sleeve and the back view! The garter stitch in the back makes it really comfy and stretchy. The back of the sweater is a little longer due to short rows shaping which also helps make it hang nicely over my rear end. 🙂

Cat chomping yarn. — Did you notice the cat hair on the sweater? Yep. That’s a thing as cat help and yarn chomping happened fairly frequently as I knitted… MacKenzie purrs and kneads like a madman (madkitty) in these sweater attacks so it is hard to heartlessly chase him off. I think that he especially liked the Brooklyn Tweed Shelter yarn that I used.

Shelter Yarn

I have to give a shout out to this yarn. You almost have to work with this stuff to believe it; it is soft, squishy and very light weight. My finished sweater is soft, warm, comfy, looks and hangs like a bulky sweater but weighs very little. It is almost a shock when I lift it to put it on. There are little bits of veggie matter in the yarn, but I think that is because it hasn’t been over processed. It was fairly easy to pull them out while I worked.

When I got ready to knit my sleeves I began to panic about running out of yarn. I ordered two more skeins online that were from another dye lot. I blended the new yarn in by knitting every other row for 8 rows (it did happen on the sleeves..) and you absolutely can’t see the change in yarn. I could have just skipped the blending. How’s that for quality control! Here are the Ravelry notes for my project if you want more info.

So, here it is whole month late but I am starting to think about my new projects for the year. Lots to do. You weren’t very nice to me at the start, 2016, but let’s see what we can get going now. Behave yourself!!

The View from Here: One Year of Scleroderma

It’s been a year since I was first diagnosed with scleroderma. Actually, it has been decided that I have the form of scleroderma called limited systemic sclerosis (the disease formerly known as CREST). Sounds kind of fraught, huh. That’s because it is; no matter what I think I know about my condition this week, by next week things will probably change. It has been quite a journey this year and now that all the dust has settled from the latest rounds of medical tests I wanted to share my thoughts.

There is no question that the first months after my diagnosis were filled with waves of horror and grief. At first I was just stunned to discover that I might lose the use of my hands. Then it dawned on me that my ability to live independently might become problematic; I needed to make plans to activate a support system for myself at some time in the future. Eventually I found out about the fatal complications and the high mortality rate. Well, shoot. During this time I became a driven knitter: endless pairs of fingerless mitts rolled off my needles.

CARD — My sister, who has a somewhat warped sense of humor, sent me this card about the time that I learned about my risk for pulmonary hypertension, an often fatal complication of limited systemic sclerosis.

Yet, it has been a year and I am still here. I sailed through the medical tests and none of the frightening medical complications have manifested themselves. My lungs and heart are fine (huge woohoo!!). My GI tract hasn’t gotten worse. My hands are very swollen and the skin is getting hard (one of the hallmarks of scleroderma is hard skin that forms due to lots of collagen deposition and scarring; my arms and legs are getting hard too), but they work just fine and are actually much better than they should be. My rheumatologist has advised me to knit as much as possible; what a hardship! Other symptoms have improved and I have transitioned onto a battery of drugs that have good track records for improving the quality of life and increasing survival rates in patients with my condition.

So, what have I learned this year? Here is my reflective collection of observations as I look back from the one-year viewpoint:

People are more important then things. Period.
..but they just don’t get chronic conditions and they tend to underestimate the seriousness of conditions that they can’t directly observe. In general people on crutches or using oxygen activate concern, but if you have flaming gastritis, the dizzy wobblies, and your muscles are on strike it’s easy for them to adopt a dismissive attitude. <sigh>
Medical personnel can be appallingly insensitive. Last week the technician doing my lung scan mentioned that I had a lot of doctors because my disease was really rare; it was important that the doctors get to learn as much from me as possible. Good lord, I wondered. Maybe she was raised by wolves…
As a corollary of the above observation, I have also discovered that I can’t assume that the medical personnel that I come in contact with actually know about my condition. One nurse thought that “systemic sclerosis” was “multiple sclerosis”. A doctor gave me a pep talk about how other conditions were worse because some of those patients actually can die from their disease. (“Did you want to hit him?” asked my rheumatologist…) One thing I can count on, however, is that they will put me into some scary machine to look for a possible blood clot. What is up with all the blood clot hunts?
I do have some wonderful doctors! Because of crazy interactions with random medical people I have decided that it is best to be proactive: last month I put this tag onto my keys and the little card in my wallet has the business cards of my internist and rheumatologist stapled to it.
There are few things as empowering as discovering that you won’t live forever. Why sweat the small stuff when you are facing down the long odds? My drugs have a small chance of a fatal brain infection? Whatever. Hand them over, Sparky, I am on board! I never worry about money (bad when I’m in a yarn store) or running out of gas, and I am taking more risks than I was comfortable with before. I mean, what is the worst thing that can happen? This week I figured out how to identify all of the electrical circuits of the house and rewired and installed a new doorbell. I didn’t worry (more than once) about getting knocked on my butt by an electrical mishap. Ha! In my younger days I hated to even change light bulbs…
Elizabeth Zimmerman was right. “Knit on with confidence and hope, through all crises.” is a motto that I can live with.
No, I won’t be skydiving! I’m not that risk-seeking. 🙂
It is so much easier to be happy than sad. Plant flowers. Read books. Knit like the wind! Chase bees. Go to lunch with friends (and get dessert!). Watch meteor showers and be sure to catch the Super Blood Moon. Talk to strangers in bookstores and coffee shops. Be kind whenever you can. Never miss an opportunity to take a picture of a great sunset (or a cat). It is really, really easy to be happy, even when you’re in a crazy machine that is looking for blood clots. 🙂

I finally went to my first scleroderma support group meeting a couple of months ago. I’d never met another person with scleroderma; it was a little extreme but good. Like me, they all suffer from cold hands. Unlike me, most of them also talked about the struggle to manage pain in their hands, and I could see that several of them had limited use of their hands because the skin was so tight. Remember all of those fingerless mitts I knitted during the sad times? I think that I have found a home for them.

Bolt from the Blue: The Encouraging Thunder Award

A couple weeks ago I woke up to a shock in the email box: That Girl at (Not) Another Lupus Blog nominated me for the Encouraging Thunder award, which is meant to recognize blogs that are inspiring and encouraging to their readers. Say, what? I have to say that of the many blogs and comments out there, one of the best, funniest, and uplifting to me is the one that That Girl writes. She is dealing with serious autoimmune diseases that continually derail her life, and she makes me laugh out loud while she relates the latest adventure/disaster. Check out this post about a particularly bad time waiting for her meds to arrive in the mail and you’ll see what I mean. Her blog empowers me to face down whatever may come my way and to deal with my health adventures with grace and humor. She does inspire me. She makes me laugh. She says nice things about my knitting. If ever there was a person who is encouraging, it is her.

encouraging-thunder-award

I am stunned that she passed the award on to me too. Wow. She is a tough act to follow. It is also kind of weird to think that somehow, typing out into the void about my life with cats, yarn and scleroderma, things that I think about and create connect with other people. Thank you That Girl for thinking of me. It’s an honor to accept and pass the torch (thunderbolt) on to others.

So, this is how the award works: I am supposed to talk about why I blog. That Girl used the opportunity in her post to re-examine her purpose in blogging. Here is her wonderful and reflective post. As I read her thoughts it pushed me into some reflection of my own. There has been a lot of water under the bridge since the start of the blog, and I guess as I changed over time I didn’t really think about this too much.

Here’s the deal: I started to blog because I was going through a tough time and I was isolated. My family was in crisis. I had just retired from the best job in the whole world and was in grief over the loss of my biology classroom. The transition was especially hard since I was going from an adrenalin-charged, immensely creative and social day (hello: 150 high school kiddos a day! Did I mention that it was a lab class…) to one at home with yarn and the cats. I was already sick but not yet diagnosed; it was hard to know if the disconnected symptoms, fatigue, and pain were real or me just feeling sorry for myself. I began to pour my creative energies into knitting and writing; I started the blog to put my transition into retirement out into the digital world; maybe there would be some people who shared my interests. Then the diagnosis of systemic sclerosis (and Sjogren’s) came in and I decided to share some of that. What a wonderful idea it was. Now people reach back to me and make me stronger. Thank you to everyone who has read this far down the post. You are the reason why I blog. You make me more creative (and brave) as you share your crafting adventures, your cats/dogs, your gardens, disasters, and medical adventures.

Thank you again That Girl. You made me think about all of this and I think that I’m ready to blog on!

And now it’s time for to pay it forward. Here are some bloggers who given me inspiration and encouraged me to knit on no matter what.

Sharon at Creativity and Family. This woman is the motherlode of creative inspiration. I don’t think that there is a craft she doesn’t take on. She has a button collection!! There are yummy recipes on occasion, and her kids seem amazing. They have monthly presents. Oh, yeah, she also has lupus and some physical limitations but you have to be very alert to pick up on this because she absolutely refuses to let it define her. She is kind of my hero! Check her out.
Phil at The Twisted Yarn. OK, I’m just going to come out and say it: she totally intimidates me. She has such a fun and unique voice. She takes us to all things yarn and on trips through the countryside with the toddler twinage. She creates amazing projects that I never would have thought of like a Mandala and a knitted pigeon. Reading her posts made me think about my “voice”, but in the presence of quirky greatness it is best to not try to compete.
Lisa at Comfortable in Thick Skin. What can I say? She is a scleroderma warrior. She makes me think that I should be more brave and proactive with everything in my life.
Gaye at Confessions of a YarnHo. She just moved the blog into a new home that is a beautiful professional site. She loves yarn, she is full of joy, she will make your day. The end of every post is “Knit on my fiber friends… knit on” How encouraging can you be.

If I nominated you and you choose to accept, here are the fiddly rules:

When you get this award, you can:

Post it and the logo on your blog
Pay it forward by nominating others

You cannot:

Abuse or misuse the logo
Claim the logo is your own

If you receive the award you should:

Give thanks via comments and likes in the blog of the person nominating you
Mention the person who nominated you in your award blog
Discuss your purpose in blogging in your award blog

That’s all folks. If you are reading this That Girl, thanks for the award, and thanks even more for your presence in my blogging life.

Rocking the Craft Room

This is all Sharon’s fault! I’m referring to Sharon of Creativity and Family. Yesterday I woke up to find that she had posted a long, chatty list of all of her WIPs and projects for the coming winter months. Oh, my goodness! The woman has big dreams and a diverse (and endless) number of projects all lined up. She quilts, knits, crochets, sews, is doing something mysterious with scrabble pieces, and even makes her own yarn from tee-shirts. If you don’t already follow her you should check out her post.

The other thing that I discovered when I woke up was that my wrists, ankles and knees hurt. Like the tendons. Like there is no way that I am going to be knitting anytime in the near future.

This is so not fair! I am just entering the final pattern section and bind-off of the Drachenfels. One more day (or two) and it would be done. I want it, I want it, I want it now!!! <snif>

Whatever. It’s getting warm again outside and I won’t be wearing a shawl for the next 10 days or so. Lots of time to get it finished. What I decided to do was to channel Sharon, go play in the craft room and shop the stash. If I can’t actually knit, I certainly can organize things, match patterns to yarn/projects and try to create a queue of my future crafting for the coming cold weather months. Yeah. That’s the ticket.

Storage — I already had yarn organized into types and weight. I just had to start pulling out yarn and reorganizing it in the bins with the patterns for my coming projects into some of my spare bins.

I pulled out several boxes of yarn into the main craft room and then discovered that it hurt my wrists to snap open and shut the latches on the boxes. Well, isn’t that special! Lucky for me I’m an old pro with wrist tendinitis. Years ago I had carpal tunnel surgery and spent months in braces. For a few years after that I still wore my braces when doing wrist challenging activities like moving books in my classroom or organizing boxes in the garage. I had to go on a hunt to find them, but eventually my wrist braces were located in a drawer of my desk in the office. I just needed to create some padding to go under them because I have edema in my arms these days (thank you scleroderma!!)

Socks — Well, look at these incredibly ugly hospital socks I got during my last health adventure. Just the ticket.

cutting off the toes of socks — I cut off the toes…

Thumb hole — Cut a slit in the side to make an opening for my thumb…

sock mitts — and I had the perfect padding mitts to go under the braces. 🙂

Wrist braces — Add the braces and I attackd the bins! These braces look awful but as soon as they are on my wrist feels wonderful. I think I may sleep in them tonight.

Knitting projects — Here is the finished stack of knitting projects. Good grief!!

This was just fun to do. I moved yarn around and got things reorganized to create the project bins. I copied patterns from books and magazines with my printer/scanner so that I could slip the pattern into the bin with the yarn. The big bins contain the yarn and patterns for two sweaters, and the smaller bins have 1-3 projects each. I sat down (on the floor!) with my stack of boxes and the laptop computer and then entered everything into Ravelry to create this queue. In addition to the two sweaters I have 5 shawls, 2 long mitts, 3 socks and 2 hats. I thought about trying to put everything into the actual order that I will do the projects, but that is just crazy thinking. At least I have things into the queue and can move items around as I actually get started. Check out my queue if you want to see what I have lined up. 🙂

Since I was working in the craft room with the sewing machine it was a little hard to ignore the stack of projects on the shelf next to it. I pulled them down and discovered more to do. I had actually forgotten some of this…

Autumn Quilt — Look! This is an autumn themed quilt that I started a year ago and never finished. I just need to get the batting, sandwich the layers and then do the quilting. I’m not showing the whole thing now because… reasons. If I hurry it will be done before Thanksgiving! Stay tuned.

stuff — This is a special edition Colorado themed batik that I bought to sew a Professional Tote Bag with compartments and all the room I need to drag around knitting. The pink fabric and the blue with the small dots to the left is for the linings.

and last but not least I had decided to make everyone new dishtowels this year — While I’m talking about Christmas, I also organized this idea for Christmas dishtowels. A few years ago I made everyone towels in a plaid design. When I got to the end of the warp I made this scrap with a natural colored weft. I kind of like it, and am thinking that if I get the warp back onto the loom it will make fast towels to give everyone with some of the other things I have planned.

Well, that’s it for now. I have organized and pulled to the front of the pile lots of projects and ideas. I’ve been wearing the braces for two days and my wrists are feeling better. I think that if I protect and rest them for another couple of days I will be good to go with the Drachenfels and hopefully it will be done by the end of next week.

If not I guess I’ll keep the braces on and get the garage cleaned out!

Have a great weekend everyone.

The Golden Hour

It’s here! It’s here! The most wonderful time of the autoimmune disease year. Fall colors, cooler (but not cold) temperatures, sunshine levels that won’t make me sick, pumpkin spice lattes at Starbucks, and wood smoke. Pumpkins and autumn squash soup. New yarns at the yarn store and patterns for warm sweaters. Ugg boots!! Without fail I have a surge of joy and energy at this time of year. Just like the golden hour in photography, that time in the evening when everything is softened and has a glow of light to it, this is my golden hour of the year.

Sunset — Look at this sunset! I took the picture while sitting at the stoplight. Doesn’t it make you happy? The golden hour is the hour before this as the sun was just dipping down towards the mountains in the west. Here is Colorado it makes the Rocky Mountains look softer and plush; there are sunbeams and everything looks wonderful.

What’s wrong with the rest of the year you ask? Well, let me tell you: winter is a beautiful time of year, but for a person with systemic sclerosis and Raynaud’s disease, it is a miserable battle to keep extremities warm an opportunity to rock the wool socks, shawls and fingerless mitts. This year I plan to roll out some exceptionally warm longish sweaters; I have the yarn all ready to go. I have patterns for fingerless mitts that will go up to my elbows. I bought fleece Cuddle Duds. I am really going to try to handle the cold better this year; last year I rolled out of winter with more severe symptoms than I had in the fall.

Spring is a time of gardening, hope and struggle for me as I try to get the garden’s flowers (and roses!!) going while slowly accepting that new debilitating symptoms that I thought were related to the war against cold, but which remained in the balmy days of April and May, were actually real things. Darn! No wool sock or hand warmer will fix my problems… by the time I make appointments or call for help it is already summer.

Ugh! Summer! I was a teacher, and summer was that wonderful time of renewal and rebuilding that kept me going year after year. Now summers are so fraught that they seem to pass in a blur of lawn watering and visits to Kaiser. Really, I am just a mess all summer long. Here’s the highlights of this year:

Summer started with me just a few weeks into the drug methotrexate (which I got after making a call for help in early May…) I was losing hair and taking it easy two days a week because of the drug’s side effects. Still, by juggling the drug schedule I was able to work a summer camp teaching kids how to spin and felt fiber. So fun. The camp was only 2.5 hours a day so it was perfect.
In July I developed rare bone complications from the drug (well, don’t I feel special!) and ended up at an acute diagnostic facility. That was the end of the methotrexate.
Icky symptoms reappeared with a vengeance. I had to wait a few weeks before I could start the new drug. It’s called purgatory drug holiday .
UTI strikes. Seriously!! Antibiotics, barfing and yogurt happened.
Rheumatology appointment: he starts me on CellCept with some reservations about whether my gut (which basically hates me…) can handle it.
I start the pills. Woohoo! No problems except after two days…
…UTI strikes again. Oops! I stopped the CellCept, gobbled antibiotics and yogurt, and skipped the barfing. Take that you ill-behaved gut!!
Started CellCept again the next week. Hello heartburn, my old friend. Middle of the night vomiting and belly pain? Nope, nope, nope. My gut has definitely vetoed this drug! I didn’t even make it a week before I emailed my rheumatologist to ask for something else from the land of pharmacological wonders.
Well, what do you know. There is another version of the CellCept that is a time release version that I should be able to stomach (see what I did there?). My rheumatologist and I had an email chat and he ordered it up for me.
…and the insurance declined to approve it. What?!! I wanted to send my gut on over to have a chat with them. Two visits to the pharmacy, two phone calls and an invocation of the gastroenterologist did the trick. I scored the pills on the last Friday in September. Yep. That was the end of summer and it is now time for the golden hour.

I started the time-released version of CellCept 10 days ago. You know, I think that I feel better already. My knees have stopped hurting! I seem to have more energy. I think that there is less edema in my arms. I have started cleaning out cupboards and stuff. I am happy.

Maple leaves — Look at these leaves! This is the maple tree in my back yard.

This is my year of systemic sclerosis (scleroderma): cold, pain, hope, struggle, persistence, and wonder. And this, my friends, is the best part of the whole dang year. I am full of joy with every red leaf and pumpkin that I see. I know that the snow is coming, but what the heck.

Today, today I am in the golden hour.

First Week in September: Three Bowls, Three Mitts, and a Reyna Shawl

I am knitting and crafting like crazy. Actually I’m enjoying the balmy weather of summer’s end and I’m a little nuts because I just can’t seem to get everything done. The flowers on my deck are at their best. The crickets are chirping. The temperature outside is just about perfect and I am spending my time clicking knitting needles and feeling a little less than my normal cheerful self (more about that below). Still I am making progress and the setting is just about perfect. This afternoon I decided to set up the laptop on my backyard deck and let you all know what I’ve been up to. Here it is.

My sister’s birthday was the 5th of September. I bought her a card a couple of weeks ago and I sat down and got these bowls done in plenty of time to send to her. Here the are!

Fabric bowls — A set of fabric bowls. Bet she never saw this coming! She does sew a lot and I thought that she might find these useful in her crafting area or maybe on her desk. I found the pattern online at Quilter in Motion.

Fabric Bowl — I just love the fabric! This is a Laurel Burch pattern that I found last year.

I still haven’t mailed them off to my sister. They are now days overdue but I do have an excuse (OK, it’s pathetic, but still… It’s my excuse and I’m sticking to it!). My rheumatologist started me on a new medication for my systemic sclerosis (scleroderma) called CellCept, and it just doesn’t like me. Every part of my digestive system hurts!! Boo! Today I got up and decided that I am done with heartburn (not to mention middle of the night barfing) and e-mailed my doc to ask for something else from the land of pharmacological wonders. This morning I didn’t take my pill and this afternoon I plan to make the trip to the post office. Hang on sis! They really are coming…

Now the knitting makes sense, doesn’t it. No matter how upset my digestive system is I still manage to eat (yogurt is my friend) and knit. Lots of knitting has been going on. I dug in this last week and worked like crazy on the mitts that I am designing for Alta Vida Alpacas for Alpaca Farm Days which happens later on this month. They plan to sell kits of yarn with the pattern to visitors to the farm. I’ve been trying to make simple patterns that show off the yarn. Here’s what I’ve come up with:

Mitts — This yarn is sportweight, 50% cotton (which gives it some slubs and texture), 25% wool and 25% alpaca (yum!). The yarn knits up great, feels light on your hands but is also soft, comfy and warm. I wanted them to look easy to knit (hello… trying to sell some kits here!!) but appealing. Please lay on the feedback people!

Like those colors? This is Colorado (AKA Broncos Country) and the football season starts this coming week. Yeah Broncos!! The thumb on the stripped mitt is a little different from the usual shape that I favor and I’m still thinking of knitting a stripped version with slower increases. The thumb on the solid mitts is more like what I like to knit and wear. It fits your hand with no pull across the hand and the ribbing on the top of the thumb is loose enough to allow you to wear the mitts over gloves. (Reynaud’s makes you think about things like that!) Be honest here: does that stripped thumb look goofy? Should I change it?

So the knitting continues. I want to make the mate for the beaded mitt before the end of the week, and then will do a pair of stripped mitts with a more gradual thumb increase in blue and off-white. Next I have to write the patterns, but I’ve kept lots (and lots!) of notes while I knitted so I am feeling pretty positive about that next step.

Finally, I’m making some steady progress on the only knitting project that is just for me. Check out the Reyna shawl that is finally getting towards the end of it’s knitting journey.

That’s the week. I’ve been reading a lot too, but I think that should wait for another post. And the flowers that I’ve got blooming on my deck are so fabulous they are crying for a post of their own…

Hope you all had a great week (and no barfing!!).

Happy Knitting: August Socks and Yummy Shawl

I am on drug holiday from methotrexate (the drug that was given to me to treat my systemic sclerosis) right now and I feel great. I have energy, my joints and muscles are happy, and there isn’t even a hint of dizziness. OK, my ribs are still sore and I have to be careful moving around, but still… Wow! It’s been more than a year since I’ve felt this good. It is now obvious that, even though there were side effects and some of them forced me to quit methotrexate, it was working. My goodness it made a difference. I am gardening, cleaning house, cooking up a storm, and rocking the knitting. Happy, happy, happy.

In the middle of upbeat gardening yesterday I remember that it is also August. Time to cast on the New Year Resolution socks for the month. I dug through the sock books again, found a happy looking pattern and hit the yarn stash to search for a cheerful yarn dyed with long color sequences. Here’s what I came up with. Say hello to the August Socks:

Isn’t this the happiest yarn you have seen all week? Agave Fingering by Becoming Art Yarn in the colorway “Cherry Tart”.

As much as I like the seafoam stitch I think that I won’t continue it down the top of the foot of the sock. I will be wearing these socks inside of shoes all winter and I’m wanting the socks to be really warm and long wearing. If the colors pool badly in the foot it won’t matter that much to me at that point. With cute tops like these, nothing can happen in the foot that will spoil things. 🙂

When I dug through the stash I also found this yarn that I bought on a whim but still hadn’t knitted up because it is really busy in the colors. I’ve been waiting for the right pattern.

Solution: Reyna Shawl by Noora Naivola. The pattern has a lot of garter stitch and sections of mesh lace that should highlight and then breakup some of the colors in the yarn. The edging and center stitch is a little different to me, but it is nice to learn new things, right? Further down the shawl there will be a lot more lace and the yarn will look different. I can’t wait to see what happens when I get to that part of the project. Here are my notes on Ravelry.

These two projects have kept me pretty busy but I have also been out in the garden. I sewed on the garden chair a little more and started attaching the sides to the frame. It is stretching out just right but the midpoint is refusing to slide on the frame; it still hasn’t expanded to the correct proportion. I soaked the stiff area with the hose this afternoon and left it to think about what it was doing for awhile. Let’s hope that does the trick as I’m afraid to tug on it too hard because my ribs are still sore.

I’m on drug holiday until I see the rheumatologist on the 20th. Let’s hope that I stay symptom free until then because I am totally focused on happy right now.

New Chinese Curse: May You Have An Interesting Disease

It has been two months since I started the drug methotrexate for my systemic sclerosis (scleroderma). I put off starting the drug for a few months as I was concerned about potential side effects (well, for one thing, it increases the chance that I will develop cancer. Since I’m now at high risk for lymphoma that kind of gave me some pause…), but struggling with fatigue and other annoying symptoms I finally made the call to my rheumatologist and started on the drug.

The first month was a little hard; nausea, headache, more fatigue, and what I called the dizzy-wobblies. My hair started falling out. By the second month, however, I began to notice that my muscles had stopped hurting. I had more energy. The edema in extremities was definitely much better. I was out of the house and doing much more. Hey, this is improvement. Go methotrexate! I was ready to make the pom-poms and sign up for the cheer squad.

Then more downsides began to emerge in the second month. I started to notice that my knees really hurt the day after I took the methotrexate pills. As always, I checked the Internet to see if anyone else had noticed this. Yep. It’s a thing. I decided to baby my knees a couple days a week and to keep on with the drug. Then my back started to hurt, I noticed a rash on my arms the same day that my knees hurt, and itching became a thing. My ribs started up with shooting pains. The pain spread to the entire right side of my lower ribs, I struggled to breathe and it was hard to raise my arm. Yikes!! The pain was so widespread it didn’t seem reasonable that it was just a cracked rib…

IV in arm. — Here I am with the IV tapped off so I could make the trip to the CAT Scan machine.

That’s how I ended up at the acute diagnostic center run by Kaiser for we after-hours folk that don’t want to go to the ER. (The ER has sick people. When you are on immuno-suppressants you avoid sick people like the plague!) The nurse was nice. The doctor was great. The words “possible blood clot in your lung” and “we want a CAT scan right away” were said. I would have been more upset if they hadn’t also just said “we’re giving you morphine to get this pain under control”. I would have hugged that nurse if I could lift my arm.

Then she blew it. As she stuck me with the needle to start the IV she said, “I once worked with someone who had scleroderma so I’ve heard of it before. Such an interesting disease. She did develop heart problems though, which was sad since she was so young.” Great. This is sort of like a Chinese curse: May you have an interesting disease. I grumped about her comment to my son who was there with me. “Well, you have to admit, it is kind of interesting,” he said.

Aside: It is an interesting disease. One of the great ironies of my life is that I have a degree in molecular biology and once worked in a rheumatology research lab on a scleroderma project. My boss Dr. Angeline Douvas and I at that time used the auto-antibodies from scleroderma patients to capture and identify the protein SCL-70 (topoisomerase). We spent a lot of time speculating about what was going on in these patient’s genes and why that was manifesting itself the way it was in their clinical symptoms. We were suspicious that it might be triggered by a virus. Here’s the paper: I’m the second author. Angie would find my diagnosis to be so interesting but she passed away in 2000 before I became sick. Yep, it is all so interesting. Anti-centromere antibodies! What the heck is going on here?! This is an important disease that should be researched not just for a cure to help people who have it, but to also gain essential understandings about cells and genes that can be used in the treatment of many other diseases. As it turns out there is a bill in congress right now concerning scleroderma and fibrosis research and you can contact your congressperson using this link.

Still, I found the nurse’s interested detachment from my personal situation to be somewhat appalling. Still in pain I was wheeled off for the CAT scan, and then waited for my chat with the doctor. NOT a blood clot. NOT my liver. They could see old breaks in my ribs (thank you osteopenia) but NOT a current one. It turned out that it was inflammation of the cartilage in my ribcage, a condition called costochondritis. It’s a scleroderma thing, just another bump in the road when you are dealing with a complex medical condition. Fabulous. The Internet tells me that it usually resolves within a year. OMG! A year??!!! That’s a lot of pain killers! Oh wait; that’s a lot of knitting! Best to look on the bright side.

The next morning my rheumatologist’s office called to let me know I should stop taking the methotrexate. Farewell, methotrexate. It was nice getting to know you but you didn’t play nice with my cartilage. I now have an appointment with my rheumatologist on the 20^th and he will discuss my new drug options with me then. I’m sad to let methotrexate go, but so glad that there are other drugs out there waiting for me to try them out.

Just another day in the life of an interesting disease.

FO Tee, a Garden Swing, and an Excited Spinning Wheel.

I know that I have been a little whiny lately. I started methotrexate a little over a month ago and the adjustment to the new medication has been challenging to say the least. This week was better. Much better. So sorry for the whining. I ~~promise~~ hope that I won’t be doing that again for a long time. Check out all the things that were accomplished this week.

Knitted Tee — I got the Clove HItch Tee finished! Here are the project notes on Ravelry.

Tee Sleeve. — Look at how cute the lace detail is on the sleeve. This yarn is a linen blend and will be cool to wear even though it is a worsted weight knit.

The whole time I was knitting this tee I worried about how big the neck opening was. As soon as it was cast off the needles I tried it on, and yep, too big. I ran a drawstring around the neckline on the inside to draw it up a little and to prevent more stretching. Neckline problem totally fixed: it fits great! The top is loose and a comfy layering piece. I’m thinking that I would like to make a second one with long sleeves using a winter yarn that will be lighter in weight. Maybe in navy blue. I plan to keep that garter stitch band on the sleeve and will continue the sleeves in stockinette below the band.

Crocheted lawn seat. — I have now crocheted the entire back of the lawn swing and am continuing on to make the seat. I draped this over the back of the swing; it’s longer than it looks in the picture.

The lawn seat is coming right along. The fabric will stretch when I sew it into place so it will be more open looking when it is done. I haven’t completely decided how to attach it to the side pieces of the frame. I’m afraid that the attachment solution won’t be very elegant, but hopefully it will be functional.

Wednesday I went out to visit a friend’s alpaca ranch (she has sheep too!!). I am consumed with jealousy. Such cool animals wearing fabulously cool fiber; she has a whole dyeing and processing operation going. I didn’t take any pictures because next week there will be a summer camp there and I get to teach kids how to spin! Ha! Stay tuned for the summer camp report. 🙂

Today I took the car to get its oil changed and battery replaced. I know that this sounds like a small thing, but I am rocking my good week and getting a lot of things done. After I got home I cleaned out the garage and packed my spinning wheel into the car because tomorrow we go to a class to learn how to spin camelid fibers.

Spinning Wheel — Look! The wheel is already strapped into the car and ready to go. It is so excited! This is its first trip out in almost a year; no more sulking in the corner for this little guy.

That’s right. I still have a bag of paco-vicuna that I am nervous about spinning. The spinning class is taught by Chris Switzer who has quite a reputation as a master spinner of these fibers in this part of the world. I am taking the paco-vicuna bag and a chunk of my alpaca fleece with me to the class to get feedback on spinning techniques for the yarn that I dream of creating. Not that I’m intimidated, but the class registration says to bring some things that I’ve made from my homespun yarn with me. I have spent an hour finding things that I’ve made; I’ve decided to only take ~~two~~ three things. Maybe three is too many? If I take two substandard items she might think it’s a fluke. If I have three, it’s pretty sure that’s the type of spinner I am. Whatever. It’s best to not overthink this. I’ll take three that I like and that will be that. I’m taking the class with a friend who likes to spin crazy lace weight yarn and it is going to be wonderful!!

I finished reading all of the bee books this week too. I feel another post coming on. Some of the books were a little bit of a chore to finish, others were just amazing. Hmmm….