2022: New Year, New Goals

I’ve been working out ideas for goals for this new year. I have ended up with a lot of ideas, some of which will probably be abandoned, but still I thought I would share them to see what people think.

Knitting

  1. Oh, my yarn stash is totally out of control. I am going to do everything I can to get it willowed down this year, and the main strategy is to produce as many hats and PICC line covers for the Kaiser infusion centers. I am also thinking about asking my rheumatologist if she would like to have some arm warmers and fingerless mitts to gift to patients struggling with Raynaud’s. Anyway, I’m thinking that I should try to knit out at least 50 skeins of yarn this year.
  2. I have several sweaters all lined up to knit. This will be the year of sweaters!
  3. I have this Coco Knits book that I have been wanting to knit from. A few weeks ago I scored some great yarn from someone destashing – I know I was bad, but I couldn’t help myself. I got 6 skeins of worsted and 7 skeins of chunky yarn in greys and they are perfect for a couple of these sweaters.
This yarn was too nice to walk away from. The light grey is The Uncommon Thread and the dark grey is MadTosh yarn. Perfect for a Coco Knits exploration.

Weaving

Look! Another book to work my way through!

The poor loom has been languishing for some time now. In my defense I would like to plead kittens, but I have a plan where I will warp the loom in a closed room and then I should be able to weave. Time to learn some new stuff! Hey, maybe I can use up some yarn this way too.

Spinning

I think that I should spin this, right?!

I have been avoiding this impulse buy for some time now because the fiber is pretty expensive and I don’t want to ruin it. Whatever. This year I am going to spin this up and make something wonderful from the fiber like maybe a cowl and mitts.

Books

I keep buying books that are interesting that then get parked on my bookshelf.

I am going to read some of the non-fiction books that I bought with thoughts of self-improvement that weren’t read right away because I moved on to some space opera type book instead. Hey, I’ve had a tough couple of years and I needed lots of distractions. This year I will read at least 6 of these books. For sure. I promise. I read 66 books last year, so if I read 50 this year I should be able to manage 6 of these more non-fiction guys.

Quilts

I have made a lot of progress working my way through all of the quilting kits that I bought over the years, but there are still these two hanging out in the sewing room.

Aren’t these cool?!

I have put off working on these because they are pretty complicated with a couple of stacks of different colored fabric in each pack. Still, what is the worst thing that can happen? If I mess up in cutting the fabric I will just go buy some more… The Fiesta quilt is a wall hanging so I will probably start with that one as it will be easier for me to quilt.

Blogging

  1. WordPress is offering classes. I have been thinking that maybe I should take a class or two and become a little more competent.
  2. I have been thinking about starting a couple of other blogs, but finally decided to just add additional topics to this one. I’m going to start blogging about all the things in the natural world that I love and that are wrapped up in memories. I’m thinking about calling it … The Biogeek Memoirs. How geeky is that? Anyway, don’t be astonished if I start blogging about potato bugs, geese, and owls.

Goodbye 2021: Year’s End

This is the last update for the year 2021. You know, 2020 was a pretty bad year for both me and the world, but 2021 just plain outdid itself. THIS HAS BEEN A HORRIBLE YEAR!!!! Seriously, I have been reflecting on all the horribleness of the year, and it is multilayered in the just plain awfulness of it. Here is some of the angst, anger, and sadness in a nutshell.

If you aren’t wearing a mask these days, shame on you!! I have been in lockdown for two stinking years (!) and I am over all your anti-public health nonsense.

If you are one of the doctors who told me that there wasn’t anything that you could do for me (and to not come back), or that I had sleep apnea, or that I needed to exercise more, or that my tests showed that I was fine and you would just continue to monitor my symptoms… shame on you!!! I finally received credible diagnoses this fall (from new doctors) that explained my symptoms. You know, the ones that you ignored or dismissed all those times I came to get help… It is good to get diagnosed, but in this case it is also a mixed blessing as my condition cannot be reversed and management is going to be difficult. Shame. On. You!!!

If you are one of the people who believe that the election in the US was stolen and that the answer is to impede the ability of American citizens to vote, or to create a provision that allows the legislatures of some states to just overturn the results of elections, or to resort to violence… shame on you!!!!

Did you notice that the number of exclamation marks kept growing? That’s how much shame is attached to those targets. There, I got that off my chest and let’s hope that things go a little better in the coming year.

True to its rotten black heart 2021 went out in absolutely dreadful and ironic fashion. First the dreadful.

We are in an extreme drought where I live and everything is brown. The grass, the fields, the bushes and even some of the evergreen trees are now brown.

Last Thursday, December 30th, we had a high wind event in my state of Colorado as a major weather front pushed its way towards us over the Rocky Mountains. In the area around Boulder, Colorado the gusts were extreme (one was clocked at 115 mph) and the sustained winds through the day were around 75 mph. Several fires started and swept through dried fields and brush towards housing developments and towns with horrifying speed. There was nothing that could be done as subdivisions, stores, and hospitals were evacuated; the fire crews set up base in the parking lot of a mall where they could best defend themselves while waiting for a break in the wind. No joy there throughout the afternoon and early evening. There were heartbreaking scenes of burning homes by others covered in Christmas lights. People parked along the major freeway hoping to see if their home was still standing. The historic downtown area of a town I have frequented in the past was lost.

At around 3pm I realized that the worst fire was near my son’s home in northern Westminster. As the evacuation zone continued to grow to within a mile of him we started to make plans to get him and his pets out safely. It was a nightmare as firetruck after firetruck rushed north towards the fire line in the night past his windows. By midnight the winds had died down, the fire stopped its spread to the south, and my son was safe. Daylight the next day showed that the damage was just horrific. Almost 1,000 homes have been lost, thousands are displaced, and the hunt for the missing is ongoing. There is information about all of this here.

Then the storm arrived on New Year’s Eve.

In a cruel twist of irony, after failing to deliver any real snow all fall and early winter, the winter storm arrived New Year’s Eve with snow, icy roads, and bitter cold. Like, we started the day at 3 degrees Fahrenheit yesterday. Serious, serious cold after weeks of warm sunny weather. All those poor people who escaped with only the clothes on their backs in the wind/fire event now have to deal with this. Bad 2021, bad!!

And that, thankfully, was the end of the year.

I also finished my Kevat sweater in the final days of the year.

It is wet and blocking in this photo, but not finished. See the loose ends of yarn?

I did finish the sweater with the ribbing and I-cord to make nice open and clean edges. I decided to block and try on the sweater again before knitting on a little lace edging onto the bottom; if the length is exactly right there won’t be any lace added. I did do a little math, however, and I do have exactly the right number of stitches to do the lace. It’s a sign, right?

Mateo: Happy New Year

Hannah and Mateo (AKA the Coalbear) and I all wish you all a Happy New Year. May things take a turn for the better with the coming weeks and months.

And 2022, you had better behave yourself or I’ll be sending you out on a walk of shame, too. I do have to warn you, however, that I am a little concerned with how you are starting out…

Because this year we are going to learn how to cope with a million new Covid cases a day in the US, and I am going to deal with this whole broken heart thing that I have going on, and we are going to f*cking save democracy. Shape up quick 2022, because this is the tough time, and you had better show some backbone, because I expect you to fight like you really mean it for the things that are really important.

The Saturday Update: Week 51, 2021

Whew. I made it through the holidays okay and now I am on the downslide to the end of the year. The world is still brown out front; there was a tumbleweed on my front doorstep this morning (blown in from who-knows-where overnight), and the squirrels continue to run like crazed maniacs through the trees, over the roof, and through the leaves in the back yard. I never rake the leaves in the back as they are good mulch for the lawn over the winter… who knew that they also served as squirrel entertainment? The snapdragons are still blooming out front! It sure doesn’t seem like winter, but the days are short now and the Canada geese are here in their winter thousands with noisy flocks crossing the sky over my house late each afternoon, winging their way through the growing dusk towards the evening star and the lakes to the southwest.

Knitting

There was a whole lot of community knitting going on this year, and very little Christmas knitting. I did make several of these excessively cute coffee cup cozies that are designed to snazz up your morning Starbucks drink. I gifted them with a Starbucks card and a Snow Man cookie to some family and friends this year. Fast, easy, simple, and I hope they are the perfect thing on an outing this winter. I’m keeping my cozy in the car for my trips through the drive thru!

Pretty darn cute, right?

I also paused the community kitting for a couple of weeks to work on my new Kevat sweater (Caitlin Hunter) which is going to be a great addition to my winter wardrobe because… winter is awfully warm this year.

It is going to fit!!

I am pretty sure that I mentioned before that I am absolutely reckless with my swatches before I cast on sweaters. Like… what swatch? It isn’t like I haven’t knit this particular yarn on these size needles before, right? Still, there is that moment of anxiety when I take the stitches off the needles and try on the WIP to check for fit and length. Yay! Huge sigh of relief! I’m going to add a few more inches to the body and then I will make decisions about the bottom ribbing. I am so very happy with the knitted texture of the body since I used another stitch instead of the lace pattern in the sweater design. This is a win!!

Garden

Since it is the end of the year I’ve been kind of thinking over how things have been going. You know, kind of like that “How it started; How it’s going.” meme that seems to be popping up everywhere. Let me present to you now my jade plants.

That’s three years of growth on those jade plants and I do hope that someday they will bloom for me. Look at how well cared for they are!! Everything a jade needs plus the attention of cats.

Cats

It’s been a big year for the two cats. Little 3 months old Mateo (AKA the CoalBear) arrived in June to a desperately in-need-of-a-playmate Hannah.

Watching these two over the last 7 months has been a riot. At times I think it was a little much for Hannah (Mateo would not leave her tail alone!) but now, at the end of the year, they have finally settled down and are sleeping together: best buds and playmates.

That’s it. Have a great week everyone!

Read a little, knit a little, and garden like your heart can’t live without it.

Hannah and the Coalbear: Merry Christmas to all and to all a good mouse.

Hi. I’m Hannah.

Mom has gone off for the weekend and left me and the CoalBear home alone with the Christmas tree.

We actually are having a good time. The squirrels outside played for hours and hours on the back deck and in the leaves in the yard where my kitten and I could watch them. Best fun ever!! Now it is evening and the squirrels have all gone to bed for the night, but CoalBear and I are just getting started.

CoalBear is planning an assault on the Chistmas tree…
The reindeer out front is outshining himself…
and I’ve put on my party hat for the big night!

We are hoping to find some nice mice under the Christmas tree to play with, and if not a mouse, then certainly a bug or two. We hope that you all have Christmas’ that are as excellent as ours.

And remember to be loving and kind to all you meet this holiday season.

A good friend is the best present anyone can have.

Merry Mousemas, everyone!!

>^..^<

Hannah

The Saturday Update: Weeks 49 and 50, 2021

December. I can hardly believe that we are at the tail end of the year already. The weather has been engaging in sneaky trickery for the last two weeks; crisp blue days with wind, wind, wind and almost no moisture. This week was so crazy that the weather warnings for the state were for hurricane force winds, fire, snow, avalanches, and good lord, who is in charge here? We have had serious weather fronts passing through leaving damage in their wake and very little moisture on my side of the mountains.

We finally got some measurable snow which brought an end to the long streak without snow in our part of the country.

The snow that arrived a week ago was only a flash in the pan: by noon it was gone and there hasn’t been anything since. Looks like we are in for a brownish holiday season. I am grateful, however, that we have been spared the horrible tornados, heartbreaking damage and loss of life brought by these systems in other parts of the nation.

Inside the house, however, it is starting to look like Christmas!!

Last year I put up very few decorations at Christmas time because… kitten. This year I have decided to surrender to foolishness and put up most of the decorations in a careful, kitten-proofed manner. I only put plastic ornaments on the tree. The tree, usually on a little table to give it height, is on the floor. Banners and wreaths that go on the walls are far from kitten claws. The usual poinsettia and paperwhite narcissus are nowhere in sight. Wrapped presents? Don’t make me laugh… kittens love paper.

They are having a great time with the stuff that is out!

Knitting

There has been some holiday knitting going on, so it has to remain secret until after gifts are opened on the big day. I have been making a few more hats for the patients at Kaiser infusion centers in my area, but who wants to look at those guys again? Let me please show off all of the progress that has been going on with my Kevat sweater (designed by Caitlin Hunter) over the last two weeks.

Ta-daa! Isn’t it looking good?!

They are hard to see, but there are bands of lace between and below the Fair Isle colorwork on the yoke of the sweater. That’s what’s going on between the ridges of garter stitch on the yoke… it is kind of cool and I like it. Once the stitches for the arms were separated the entire body of the sweater was designed to be knit in lace. I decided that I wanted a little sturdier and warmer sweater and knit a purl dot pattern that I like from previously knit Caitlin Hunter design (Misurina) and I’m pretty happy with the slight texture it brings to the body of the sweater and how it helps break up the color in the variegated yarn. Win, total win!!

Okay, now for the ugly parts of this sweater story. I made a mistake following the charts for the lace and colorwork parts of the yoke and ended up with almost 50 TOO MANY STITCHES on the needle. This is what happens when you are too stubborn to move the stitches onto a longer needle when things get kind of cramped (it was only a few rounds before the sleeves were separated from the body of the sweater) and you are struggling with a small chart (which I could have easily enlarged…) and it is late at night. I had to put the sweater into time out for the entire weekend and then moved stitches to a longer needle to facilitate tinking back almost 6 rounds of work. I also had to recover some dropped stitches… did I mention that I had already separated the sleeves from the body when the ugly reality of my stitch count hit me…

Doesn’t it all look great now?!

This sweater is supposed to be cropped. I need to put the stitches onto a holder soon so I can try it on for fit and to decide how much longer to knit the body. Did I mention that I never do a swatch? Reckless is my middle name… Anyway, that moment when I try on the sweater is a huge milestone for me. 🙂

Should I add a bit of lace to the bottom of the sweater after the ribbing? I’m thinking of doing the ribbing, binding off in I-cord, and then picking up the stitches to knit the lace bottom to mirror the lace in the yoke.

Garden

It is a boring time in the garden. I hate to even talk about it. The snapdragons and some of the other bedding plants are still hanging on in the front gardens where they are peeking out in the gaps between the dried leaves that I heaped on them to bed them down for winter. This is kind of crazy. I don’t know if I should water them or encourage them to go to sleep by heaping on more leaves and mulch.

Inside the house the indoor garden is also a little boring. My jade plants are… huge, green and boring. They are still caged in with chicken wire to protect them from the kittens (and vice versa) and so far the kittens are leaving them alone. The orchids are also green and kind of boring. The plants are all sporting new roots and three of my 5 plants from last year are putting out shoots to bloom. That’s pretty good, but still a little boring as I am weeks and months away from blooms.

In the kitchen my hanging bougainvillea is blooming again and covered in new growth.

I wasn’t sure if the bougainvillea would survive over the winter in the house but it is doing much better than I expected. Yay!

Books

Yep. I’m reading another science fiction book that matches my knitting. Space opera is just what a frustrated knitter needs while recovering from a knitting disaster.

That’s it. Have a great week everyone!

Read a little, knit a little, and garden like your heart can’t live without it.

May you all have a wonderful holiday season.

The Saturday Update: Weeks 47 and 48, 2021

Hello December. How nice of you to bring us clear blue skies, warm sunny days, and absolutely no freaking moisture of any kind. The leaves are all gone now, the grass has turned a sad dormant brown for the winter, but all of the snapdragons are still blooming away in the unseasonable warmth and I’m still giving them water to keep them going. There is some talk of maybe getting some snow on the 10th… The squirrels rocket along my back fence every afternoon and dash over the roof to get to the olive tree in my neighbor’s front yard; Hannah rockets through the house as she tracks their movements and watches them through the windows. The great horned owl caught one of the wild bunnies last week and now there is only one sad little bunny to be seen in the evenings. I hope so much that it wasn’t my little backyard bunny of the summer that was caught, but I’ll never know for sure.

On another note, we are getting ready for Christmas!

Hannah was tremendous help as I tried to get the wooden reindeer assembled and set out front for display, and of course Mateo was the perfect kitten as I took his official Christmas picture. Do those reindeer look a little strange to you? They are much, much cuter when they have their evergreen cutting antlers on their heads, but I decided to not include the cats in that part of the assembly. Now the deer are outside sporting cute cutting from my Douglas Fir tree as their antlers.

Knitting

I’m still knitting chemo hats and PICC line covers like crazy for the Denver metro Kaiser infusion centers and they are slowly piling up in a couple of boxes in the craft room. Weekends, I have decided, are for my knitting, so I spent today knitting away on Kevat, a little cropped short sleeve sweater that has lots of character and detail.

This sweater is knitted from the top down and this is the beginning of the yoke. So far there is colorwork, a little lace, texture and bobbles. No boredom here!!

I’m about halfway through the charted yoke and then it will be time to split the sleeves off and do tons of lace through the rest of the body. The blue yarn is from Uschitita and I know that it blooms really nicely when washed and should handle the lace in the body well.

Books

I made a lot of progress on the sweater today because I am also listening to a great book while I work. Okay, I think that it is a great book, but that is because it is the final book in the space opera series The Expanse and I have been waiting and waiting for this book for months. I love this series, and it and the television production based on the books are great examples of quality story telling in any venue: that they are space opera makes it even better!!

The perfect Saturday afternoon.

I have been faithfully following this story ever since the first book, Leviathan Wakes, was published years ago. I was captured not only by the fast-paced story, but also by the well-developed characters and economic/political themes. The story has evolved through the 9 books of the series as wars were fought, mysteries solved, villains apprehended, and characters aged. There have always been some important threads left hanging (um… there are these gates that are connected to ancient aliens and their unsuccessful attempts to prevent their own extinction…), and it seems that all of these threads are being picked up and resolved in this book. I’ve been told that the final resolution of the story is great, but I won’t know for sure until I get there myself.

I have one hundred pages left: Sunday knitting!

That’s it. Have a great week everyone!

Read a little, knit a little, and garden like your heart can’t live without it.

Remember to play nice with your toys…
and your friends!!

The Saturday Update: Weeks 45 and 46, 2021

It is finally getting cold, but there still haven’t been any official snowfall in our area. As of today we have set the record for the longest recorded gap in snowfall in modern recorded weather history for the state of Colorado. I have moved all the potted plants outside again and all indications are they will still be healthy and blooming on Thanksgiving. Okay, there was a little issue with the potted geraniums that I brought into the house a couple of weeks ago… I found a caterpillar on a geranium cutting in the indoor garden!

That dang caterpillar appeared on a shoot I was rooting… it had already finished off the African violets in the garden.

The cutting had rooted successfully, but with that caterpillar it was immediately tossed outside with the remains of the violets and all of the other geraniums that had come indoors for the winter. Poor geraniums. In a few days they should succumb to an overnight freeze. Life is cruel, little guys.

Yarn

I am still knitting like crazy for Frayed Knots, the community knitting group comprised mostly of Kaiser employees in my area. Last week one of the infusion centers that we knit for requested that we supply them with some PICC line covers, so I did a little search on Ravelry, found a pattern, and started knitting some of the covers along with the hats.

This week I produced 6 hats and 3 of the PICC line covers.

I have settled on a few hat patterns that are easy and should be comfortable for chemo patients. They are Barley Light, Barley, and the Sockhead patterns. The pattern for the PICC line cover, designed for one in the upper arm, is here. I am so happy to be putting the leftover and unused yarn in my stash to a good use.

Garden

Well, the garden sure took a hit this week. The African violets are toast and you already know about the geraniums. I am happy to report that the orchids, however, evidently weren’t all that tasty for the caterpillar as they seem to be unharmed.

These gorgeous bloomers are the plants that I bought this fall. Inside the garden, under the grow lights, the plants that bloomed last year are flourishing with lots of new growth, an explosion of air roots, and new stems for blooms are emerging!

The green shoot pointing upwards is a new stem for blooms. Yay!! The silvery new growths on the leaves below are a couple of new air roots. Yay! Happy plant.

A couple of other orchids are also putting out stems; one plant has three new stems on it. What is that liquid on the orchid, you ask? I sprayed Neem oil on all the plants left in the garden after the caterpillar was escorted out the door…

Books

I’m back to reading science fiction. The main character in the book I’m reading right now is a sentient space ship called Trouble Dog and of course the captain of this ship is a woman facing down the monsters in the dark of space. I just finished the first book in the series called Embers of War and I’m hooked. Luckily I get the audiobook for no additional cost so I can listen to the books at times while I’m knitting away on the hats and PICC line covers. I have to laugh a little as I knit and listen to Trouble Dog’s tale as I manage my yarn around my own little Trouble Cat…

Who, me?

That’s it. Have a great week everyone!

Read a little, knit a little, and garden like your heart can’t live without it.

The Saturday Update: Week 44, 2021

And just like that, blue skies and warm sunny weather returned.

All the leaves are off the trees and the little wooden bear is longing for some snow, but the potted flowers are still blooming their hearts out.

Today was the last sunny day before the next cold front; sadly these flower are in their last bloom for the year. I plan to plant the snapdragons into the gardens in the back yard this coming week and the geraniums will be coming in to live with the cats over the winter.

Let’s hope the geraniums fare better than the potted palm has.

Huge flocks of geese now fly over my house each dusk. Squirrels chase each other down the back fence and over my roof; one got caught in a downspout of the rain gutter yesterday, setting off a panic with the cats. The last leaves are still sailing past my windows, but in my yard my trees are bare. Even though the flowers are confused, fall is now hard upon us.

Knitting

I’m still knitting hats like crazy for the Kaiser infusion centers. Yesterday I finished weaving in all the ends, took some pictures, and bagged each hat up with a little note telling the new owner about Frayed Knot, the group that I joined that handles the donations. Tomorrow I will drive them to the drop off location.

So far I’ve produced 4 Barley Light hats using MCN yarn, 2 Deco Beanies with superwash merino in DK weight, and three Anrheg hats using single ply merino wool. All the yarn came right out of the stash, and I have to say that it is kind of exciting to dig around and pull out yarns that have been languishing in there waiting for their purpose to arrive. All of these yarns were loved when I bought them, but somehow never used. Now their time to shine has arrived and I am on fire to produce as many as I can to help the group meet its goal (600 hats) this year.

Books

I finished this book after all!!

I was up into the wee hours of the morning finishing The Madness of Crowds by Louise Penney. I was a little worried that it had a topic that hit too close to home for me, but it was handled so well that I really came to love the book, and the eclectic cast of characters, as the chapters flew by. I don’t want to spoil too much, but I think that it is okay to say that this book drew heavily on the Covid pandemic (which is still going on and not ended as the book supposes) and created a character that argues, persuasively, that in a world that is limited in resources it is a duty for those who are a burden to society to submit to mandatory euthanasia. Um… wow. Pretty outrageous, don’t you think, but I can almost see it happening. There were hints of this in the worst of the surge last year before we had a vaccine when I heard people dismissively argue that the people who were dying from Covid were all old or had a comorbidity that contributed to their death. It was almost like… hey, they were going to die anyway, right? Why should this affect me? There were people who seemed to believe that healthy people should not be inconvenienced in any way to protect the vulnerable. There were policies enacted by leaders in positions of power that were designed to magnify the outbreak in an effort to reach herd immunity with little or no considerations for the vulnerable…

You know, if you think about it too much it is depressing. Enough of that. On to the book!

So, since this is a murder mystery, there is a murder that is associated with the charismatic individual who making this argument and who is heading up the movement. And the murder happens in Three Pines, of course. And there are a plethora of candidates that bring an array of social messages to the situation, and memorable richness to the story. Chief Inspector Gamache is on the case with his team from the Sûreté du Québec, his highly gifted neighbors, and some distinguished visitors. And a duck.

I really am glad I read it.

The Scleroderma Chronicles: The Blue-Lipped Zebra Gets Her Diagnosis!

At last. I mean, this has been going on for more than 5 years and had reached the point of utter absurdity. If you haven’t been keeping up on all of this, I have been struggling with shortness of breath and sporting blue lips for way too long. I also have pretty significant fatigue, chest pain, and major muscle and joint pain. I’m a mess.

I have a rare autoimmune disease called limited system sclerosis(scleroderma) which makes me high risk for lung and heart issues. People with rare diseases are called “zebras” in the medical community; since I’m sporting blue lips I’m the Blue-Lipped Zebra (BLZ). Got that?

My doctors do routine testing to monitor me for heart and lung conditions associated with systemic sclerosis; each time I had an echocardiogram and a high resolution CT scan the results were that I was… fine. No indications of a major problem.

But I was absolutely, positively not fine. I began to refer to the reassurances that all was okay as medical gaslighting. I transferred to new doctors. I got copies of all my test results, did lots of google searches, read research papers and articles in medical journals, and began to have evidence-based discussions with my doctors. They ordered up more aggressive testing of my heart and lungs. I posted about the my right heart catherization and CPET here if you want to catch up.

Last Monday my cardiologist called and gave me the final diagnosis. I have a type of pulmonary hypertension that is exercise-induced that is being complicated by a cardiac shunt in my heart. At rest, for all those previous echocardiograms and CT scans, everything was fine. When I’m in motion it is another story.

So, what exactly is pulmonary hypertension and why am I, as a systemic sclerosis patient, at high risk for it? In the most simple terms, the interiors of my lung arteries are narrowing due to scleroderma scarring and tissue growth; as the openings get smaller, the pressure of blood flowing through the arteries gets higher.

When we exercise the body needs more oxygen delivered to tissues; arteries constrict to raise blood pressure, your heart speeds up and your respiration rate increases. In my case, that constriction of arteries in my lungs makes the blood pressure in the lungs increase too much; blood struggles to get through the pulmonary arteries, and the downstream pressure in my right heart forces blood to flow from the right side, through the shunt, and into the left. My body’s blood pressure zooms up as the left side of the heart fights to push blood out of the heart past the jet of blood coming in from the right side through that dang hole. It’s a catastrophic cascade that happens in seconds, and the entire phenomenon is being driven by my systemic sclerosis created pulmonary hypertension. “You’re a challenging patient,” my cardiologist told me as we talked about my future treatment. Yep. That’s me. A challenge. I excel at challenges.

Last week the new medication that my cardiologist prescribed was shipped overnight express to me by Kaiser’s National Specialty Pharmacy. Kind of unusual, right? That’s because pulmonary hypertension is rare, so there aren’t that many people taking this drug in the US. If I was a Blue-Lipped Zebra before, I am now a BLZ wearing a crown. A periwinkle crown, of course, for pulmonary hypertension.

Hannah: I should have a crown!!

When I started this scleroderma journey one of my doctors told me that it was good to have a diagnosis, even if it was a shame. This is true. I’ve learned a lot since my first blood tests came back hinting at an auto-immune disease that generated a referral to a rheumatologist.

I’ve learned to be patient. I’ve learned to advocate for myself. I’ve learned to take the initiative to learn about my disease and to become an active participant in my treatment plan. I’ve learned to face down the monster and to go on with my life.

Challenge accepted!

This is Pulmonary Hypertension Awareness month. About 15% of systemic sclerosis patients develop pulmonary hypertension as a consequence of their disease. You can learn more about pulmonary hypertension here.

The Saturday Update: Weeks 42 and 43, 2021

Halloween. It is cold and raining outside and all of the leaves are now off my trees. The plants in my gardens are bedded down under mulch to stay safe in the overnight freezes that are on the way and the bunnies of summer are no where to be seen. The children of the neighborhood have also gone somewhere else this evening as there isn’t a “trick-or-treater” in sight; the cats and I laid in some candy but no one has come.

Mateo: We got Halloween toys!!

Knitting

I’m seriously struggling this week as I adapt to a new medication, but that is a whole other post. I did manage to get my new Snark-O-Meter shawl finished and blocked in spite of tremendous cat help. Hannah loves the blocking mats and it was a battle to convince her to let me use them for, you know, blocking purposes. The kitten, faster then seems catly possible, was the master of flashing claws and nipping chompers as I tried to pin the shawl into place; he did leave the field of battle once I began spraying water on the shawl. Yay for the sprayed water blocking method! He is a brave boy, however, and was immediately back once I started to layer towels on top of the wet shawl to protect it from cats. Not to be outdone, Hannah decided that she should burrow into the towels. Luckily I had more blocking combs.

Do you understand how all this could be exhausting?

Anyway, the shawl survived blocking and looks fabulous!!

I just love how this shawl came out! All of this yarn was from the stash, and two of the colors (the gold and the orchid) had been languishing for years as I never found the right project for them. The gold especially was a problem as it is 100% silk yarn and I felt that it needed the right vehicle to show it off. The lace of this shawl with the rich colors and varied textures is absolutely perfect! You can’t see it in these pictures but the gold yarn glows in the lace and background sections.

I absolutely have to mention that Sharon from Security, the designer of this shawl (with some help from Casapinka) was banned from Facebook this week for threatening Finn, the newest (and somewhat shady) employee in the Casapinka world. Too much snark, it seems. There are some negotiations underway because both of these individuals are… cats. Hopefully Sharon will be back next week. If that isn’t the most 2021 thing that has happened this year, I’d like to hear of any others that beat it. 🙂

Books

I finally scored a copy of The Madness of Crowds from the local library. I’m early in the book and struggling a little with it as it is about the danger of ideas, misinformation, catchy messaging, and mob action. Umm… kind of the situation right now in the US. I’ll give it a little more time and then if it doesn’t perk up I’ll be going back to another science fiction novel with a strong female character who can cope with absolutely anything that the universe cares to send her way.

I’ll close with a shot of the kitten’s tail.

This is the crate that holds my blocking towels. There’s only room for one cat in the crate. The cats ruthlessly grab it when empty shutting the other one out. Kind of silly kitties, right?!

The tail is almost as big as the kitten! Do you see how much fur is on it? Maintaining that tail is almost like feeding another cat. No wonder the kitten is always hungry.

That’s it. Have a great week everyone!

Read a little, knit a little, and garden like your heart can’t live without it.

Happy Halloween!!