It’s been a long time since I’ve talked about the garden. Over the last couple of years, forced indoors because of my scleroderma, I have had to settle for some potted plants out on the back porch. My favorites among these plants have been surviving in the garage during cold snaps and snowstorms, but we have finally reached a point where the cold is too prolonged for that strategy to work any longer. Time for them to come indoors! I gave them all a little spray of neem oil to kill hitchhiking pests, dragged them inside, and put them near windows. Obviously that wouldn’t be enough light for the little rose bushes. You know, the kind that you buy at the grocery store when you meant to just buy bread, milk, and ice cream. I have several pots of those roses and those babies were growing in bright sunshine all summer! Last week I headed on over to my favorite garden center to see what I could do to help my floral buddies survive over the winter in the house.
While I was unpacking the grow light and putting it into the stand I noticed that the light fixture itself was designed to also be attached below ceilings, shelves, cupboards, or some other solid feature. There are two little metal brackets and two screws involved. Hey, this is something I can do. I have more plants needing light! I headed back to the garden center.
I’m pleased with how the plants are managing with the new light, but there is an obvious readjustment going on with the little mini-roses. They are undergoing a transition with their leaves…
I’m pruning the little bushes down to a lower height as they finish up with the last of the summer blooms and the old leaves drop off. There is so much new growth on the stems I’m pretty sure they are going to be fine.
It looks like I’m in business. Winter roses. I may not be able to get outside all that much now, but with the new full spectrum grow lights and the indoor roses it’s like I’ve brought the garden indoors.
Once again, I am knitting in my garden surrounded by my roses.
The Mother of Cats and I are still staying inside every day because of the heat. You’d think that she would devote herself to helping me cope with the unacceptable weather, wouldn’t you? I mean, look at this fur! Nope. She just turned on a ceiling fan for me and went about her business. I’m not sure she really loves me… She spends more time babying her plants outside then she does me. How could I come in second to a rose? Ridiculous!!
When she isn’t outside ignoring me and feeding her plants she spends her time downstairs knitting away on new projects. She started two new ones this week, and would you believe that she started another Tegna sweater?
She took a break from the sweater over the weekend and made a sock. So cool. So perfect to sleep in my bed with me. Did she put cat nip into it and let me have it? Nope! I’ve discussed this before, but with the Mother of Cats it is always NOPE!!
So that was the whole week. She did go off and leave us from time to time, and there was some reading, but whatever. What is important is that she spends her time with me.
I’m such a good boy. Do you see how much I am helping the Mother of Cats?
Can I have some cooking now?
Notes from the Mother of Cats:
I bought this cotton/linen yarn to make a cute lacy summer top but I was not able to get the gauge that I needed, and because of the lace it was going to be hard to adapt the pattern, and knitting tightly on small needles hurt my hands. Total fail. The solution? Another Tegna! I am so happy with the first one I knit and I think that this one will be a nice layering piece as fall arrives with the longer sleeves I’m going to put on it. My Ravelry notes are here.
Poor garden. Even though the heat goes on it is more humid now and plants are doing better. I feed everything in the hopes that roses will bloom again; so far only the tea roses in pots are responding well. That hydrangea is in a pot as I can’t decide where to plant it. I think that it is going to need shade at least part of the day. Poor thing; it really got fried in the first location I tried out. I’m wondering if it can winter indoors in the pot with a grow light on it. Hmmm…
The socks are another of the vanilla sock pattern Dave. I’m having fun playing with the colors. My Ravelry project notes are here.
Today is World Scleroderma Day. Gosh, there should be a huge post today that pulls together my whole monthly effort… nope. That sounds just exhausting, doesn’t it. How about we just head out to my garden to see what’s up. After that I can show you the big picture on what I’ve been doing all month in “Science and the Scleroderma Girl”.
Getting into the garden has been difficult for me since the sun and I are not friends. Last week I went out for a couple of hours to weed in the morning in the shade, and yep… I developed a rash on my arms and then the flare arrived. I was holed up for days getting over that little misadventure. After I recovered I tried out weeding after dark. Gosh, I’ve had more fun moping floors. It just isn’t the same if you can’t actual see what you are doing. I wonder why that is?
There are leggings too to provide complete sunblock for the surf enthusiast, but that probably is more than I need to tend to the roses. I usually get wet while I’m watering in the evenings, and once again this baby should handle it fine. I am so set up for the rest of the summer!
Let’s see what is still alive in the garden after a week of amazing, blistering heat. Yesterday it was 105°F; these plants are no longer happy.
This weekend will be cooler, and I gave all the plants a good watering this evening so that they will recover over the next few days. Poor plants. Life has been tough for the last couple of weeks: heavy rain for a week followed by triple digit temperatures and blazing sunlight.
Now that we are leaving the garden here is my Scleroderma Month of June:
Once you feel like you understand the design of experiments it is time to hunt for answers to your own questions in published research studies. I explained how to do this and shared some of my favorite links in this post.
The reason I talked about research and the tools you need to look at what is published out there is because I had to make more hard choices about my own treatment. Having more information helped me with these decisions.
Closing down the show was AP Therapy and leaky gut. I’ve been informed that there wasn’t enough venom here for a rant, but I did try.
What I didn’t put into this was a lot of actual information about what scleroderma is. Oops. This post that I wrote for Rare Disease Day should cover that glaring omission.
So, this is World Scleroderma Day. All over the world people have posted the pictures of their smiles in an effort to make an invisible, but pretty darn serious, disease have a face. My smiling face is above: a little crooked these days, my lips have gotten too thick to smile right, and my hair is falling out, but I am doing well. Every day brings a new challenge, but still, with good luck, humor and a touch of science, I rise.
The monsoon arrived right on schedule a couple of weeks ago here in Colorado. The days are now cooler, we get rainy days every week, and almost every afternoon there are thunderstorms. Some of the storms have really been memorable: serious rain, with thunder and hail. The cats have been staying inside, and the closet is getting quite a workout as they shelter in place waiting for the thunderstorms to pass.
Yet, every thunderstorm has its silver lining. After struggling through the heat of July, the yard has burst back into bloom, and with the flowers and water I’m seeing more wildlife. Flocks of birds congregate in the back, and squirrels have been chasing each other across the roof, through the trees, and along the fence, and insects are everywhere. This morning was warm and sunny, so the cats and I returned to the yard. Here are some of the highlights.
I spent the morning drinking my latte, pulling weeds, and tending to plants that were damaged in the storms. By noon the clouds were piling up again over the mountains so the cats and I packed up and went back into the house. As I write this post the thunder is sounding, the rain is on the way, and MacKenzie is back in the closet.
The last time I chatted about my systemic sclerosis status I had just seen my doctors and I was doing great. I had sustained very little additional damage to my lungs and heart, I was taking a new supplement (tart cherry) that was an anti-inflammatory that my doctors thought I could tolerate, and I just flat out felt great. I could walk without pain, I had energy and I woke up most mornings feeling *normal* which was pretty darn amazing.
At the end of June I headed off to the clinic for my usual blood tests, joked with the man who draws my blood every 60 days, and bought myself a Starbucks on the way home to celebrate another successful outing. Two days later I was wondering why my blood results hadn’t been posted to the online portal. I was outside drinking my morning latte with the cats and the roses when the call came; my liver results were fine, but my kidney function had dropped dramatically. Oops. No more tart cherry for me!
That’s when the days of wonder began. Wonder as in: “I wonder what will happen next?”, “I wonder what this is?”, “I wonder if I should call this into the doctor?” , and “Good grief, what now? I wonder when this will end?”
As soon as I went off of the tart cherry extract icky symptoms came back with a vengeance along with some new ones. It’s like they all made new friends while they were gone and couldn’t wait to show them off. Here’s what has been happening over the three weeks.
I woke up one morning with pitting edema in my arms and face. I looked like a chipmunk. I also had shooting nerve pain in one side of my face. Fabulous.
Two days later the edema was gone, but my knees hurt so bad they woke me up at 4am, and that was it for the night. Ugh! They also had swollen lumps on them!! In desperation I smeared medical marijuana cream (from a neighbor – this is Colorado and we have this stuff!) on them to see if that would help. The pain shut off within moments! I need to get me some of this stuff!!
The next day I slept through the night, but when I woke up in the morning the skin across my knees was so tight that I couldn’t bend them until I warmed things up with a heating pad. They itched and were warm to the touch. Maybe marijuana cream isn’t such a good idea after all. I’m losing patience, I tell the cats, who have piled onto my legs too since there is a heating pad in use… When will these cats learn how to make a morning latte?
Shooting pains start in my lower abdomen the day after my knees stop hurting. Diverticulitis, says the internet. Seriously! I wonder if I should call this in? I wonder if I should see that gastroenterologist after all…
Over the next several days I experienced scary low blood pressure episodes, chest pain, fevers, itching, more joint pain, and to top things off I started losing my balance and falling over without warning a few days ago.
Days of wonder, indeed. Nothing lasts; it appears that I’m on a roller-coaster of symptoms that will provide my summer thrills and scares until the ride ends (hopefully soon!). My repeat blood work showed that my kidney function had improved, and my rheumatologist isn’t saying scary things to me any more. My blood pressure is again stable, the chest pain and edema are gone, my balance is restored, and the pain in my face has vanished.
This could be a really bad time, but I’ve discovered that it is best to just go with the flow and to focus on the ridiculous side of all of this; lumps on my knees, my chipmunk face, and falling over without warning. Really, don’t you just want to bust out laughing at the thought of all that? Thank heavens I didn’t develop a rash! It is also important to notice all the wonder around me. The beauty of my garden and the flowers, the days in bed reading new books, great dinners produced in the crock pot, the antics of the cats, and the joy of putting together a new knitting project. Wonder is endless, easy to find, and costs nothing. Okay, let’s be honest. Binge watching shows on Netflix helps too.
Today I feel a little dizzy, but much better. Hopefully I’m coming to the end of the tart cherry withdrawal. That’s right. Best to stay positive and cheerful.
The Mother of Cats and I have been very busy. May is always one of our favorite months as we can finally move back out into the yard to begin summer living in earnest. Here’s a little update on all that we have been up to:
Next week we are going to put up the loom and start weaving. Woohoo!! You haven’t lived until you have put a warp on a loom with the Mother of Cats! This is more fun than a Christmas tree. Yarn chomping is tame compared with the fun of rolling in the warp!
Stay tuned. Next week should be a big one.
I’m such a good boy.
Can I have some cookies now?
Notes from the Mother of Cats: I also finished up every single WIP last month and completed the latest round of doctor visits and testing, but those will be new posts. I’m still trying to catch MacKenzie sleeping in the empty WIP basket. Every time I get up to get the camera he thinks I’m handing out cookies and comes running… rotten spoiled cat…
It is still hot here and things are really slowing down. Most of the plants in the garden have stopped blooming and the cats are on strike under the largest bushes in the yard trying to stay cool. Smoke from western USA wildfires have made the air quality where I live less than optimal so I’ve been staying indoors as much as possible; this is easy because… Olympics! Prime knitting weather!! Today I’m watching volleyball (Serbia vs. USA. Go USA!!) and cranking away on the Antarktis shawl. Okay, that’s enough detail. Here are the pictures. 🙂
That right. This cat grows new balls of matted fur daily. I’ve been shaving him when they get really bad, but he can get a little scary while this is going on (growling makes me nervous, and then there are those teeth!) so we do what we can. Last night I got almost everything off except some lumps of fur on his chest. This should be an Olympic event! I wonder who would get scored… me or the cat? We could call it single-handed cat clipping. Points are deducted if you resort to using a foot or sustain a scratch.
Last week I went to see my primary care physician and she ordered me the oxygen-to-go equipment and changed my blood pressure meds. Now my heart rate is up, my blood pressure is down, and my oxygen levels are better. I feel pretty good and have stopped the daytime oxygen. OK, I take the support tank with me when I leave the house, but things are still better. It’s a win!!
So that’s the cat days of summer. Olympics, heat, matted cat fur, oxygen level checks, and knitting marathons.
I’m on the home stretch of the Antarktis shawl. Time to decide which shawl to knit next.