November 2021 – Yarn, Books & Roses

The Saturday Update: Weeks 45 and 46, 2021

It is finally getting cold, but there still haven’t been any official snowfall in our area. As of today we have set the record for the longest recorded gap in snowfall in modern recorded weather history for the state of Colorado. I have moved all the potted plants outside again and all indications are they will still be healthy and blooming on Thanksgiving. Okay, there was a little issue with the potted geraniums that I brought into the house a couple of weeks ago… I found a caterpillar on a geranium cutting in the indoor garden!

That dang caterpillar appeared on a shoot I was rooting… it had already finished off the African violets in the garden.

The cutting had rooted successfully, but with that caterpillar it was immediately tossed outside with the remains of the violets and all of the other geraniums that had come indoors for the winter. Poor geraniums. In a few days they should succumb to an overnight freeze. Life is cruel, little guys.

Yarn

I am still knitting like crazy for Frayed Knots, the community knitting group comprised mostly of Kaiser employees in my area. Last week one of the infusion centers that we knit for requested that we supply them with some PICC line covers, so I did a little search on Ravelry, found a pattern, and started knitting some of the covers along with the hats.

This week I produced 6 hats and 3 of the PICC line covers.

I have settled on a few hat patterns that are easy and should be comfortable for chemo patients. They are Barley Light, Barley, and the Sockhead patterns. The pattern for the PICC line cover, designed for one in the upper arm, is here. I am so happy to be putting the leftover and unused yarn in my stash to a good use.

Garden

Well, the garden sure took a hit this week. The African violets are toast and you already know about the geraniums. I am happy to report that the orchids, however, evidently weren’t all that tasty for the caterpillar as they seem to be unharmed.

These gorgeous bloomers are the plants that I bought this fall. Inside the garden, under the grow lights, the plants that bloomed last year are flourishing with lots of new growth, an explosion of air roots, and new stems for blooms are emerging!

The green shoot pointing upwards is a new stem for blooms. Yay!! The silvery new growths on the leaves below are a couple of new air roots. Yay! Happy plant.

A couple of other orchids are also putting out stems; one plant has three new stems on it. What is that liquid on the orchid, you ask? I sprayed Neem oil on all the plants left in the garden after the caterpillar was escorted out the door…

Books

I’m back to reading science fiction. The main character in the book I’m reading right now is a sentient space ship called Trouble Dog and of course the captain of this ship is a woman facing down the monsters in the dark of space. I just finished the first book in the series called Embers of War and I’m hooked. Luckily I get the audiobook for no additional cost so I can listen to the books at times while I’m knitting away on the hats and PICC line covers. I have to laugh a little as I knit and listen to Trouble Dog’s tale as I manage my yarn around my own little Trouble Cat…

That’s it. Have a great week everyone!

Read a little, knit a little, and garden like your heart can’t live without it.

The Saturday Update: Week 44, 2021

And just like that, blue skies and warm sunny weather returned.

All the leaves are off the trees and the little wooden bear is longing for some snow, but the potted flowers are still blooming their hearts out.

Today was the last sunny day before the next cold front; sadly these flower are in their last bloom for the year. I plan to plant the snapdragons into the gardens in the back yard this coming week and the geraniums will be coming in to live with the cats over the winter.

Let’s hope the geraniums fare better than the potted palm has.

Huge flocks of geese now fly over my house each dusk. Squirrels chase each other down the back fence and over my roof; one got caught in a downspout of the rain gutter yesterday, setting off a panic with the cats. The last leaves are still sailing past my windows, but in my yard my trees are bare. Even though the flowers are confused, fall is now hard upon us.

Knitting

I’m still knitting hats like crazy for the Kaiser infusion centers. Yesterday I finished weaving in all the ends, took some pictures, and bagged each hat up with a little note telling the new owner about Frayed Knot, the group that I joined that handles the donations. Tomorrow I will drive them to the drop off location.

So far I’ve produced 4 Barley Light hats using MCN yarn, 2 Deco Beanies with superwash merino in DK weight, and three Anrheg hats using single ply merino wool. All the yarn came right out of the stash, and I have to say that it is kind of exciting to dig around and pull out yarns that have been languishing in there waiting for their purpose to arrive. All of these yarns were loved when I bought them, but somehow never used. Now their time to shine has arrived and I am on fire to produce as many as I can to help the group meet its goal (600 hats) this year.

Books

I was up into the wee hours of the morning finishing The Madness of Crowds by Louise Penney. I was a little worried that it had a topic that hit too close to home for me, but it was handled so well that I really came to love the book, and the eclectic cast of characters, as the chapters flew by. I don’t want to spoil too much, but I think that it is okay to say that this book drew heavily on the Covid pandemic (which is still going on and not ended as the book supposes) and created a character that argues, persuasively, that in a world that is limited in resources it is a duty for those who are a burden to society to submit to mandatory euthanasia. Um… wow. Pretty outrageous, don’t you think, but I can almost see it happening. There were hints of this in the worst of the surge last year before we had a vaccine when I heard people dismissively argue that the people who were dying from Covid were all old or had a comorbidity that contributed to their death. It was almost like… hey, they were going to die anyway, right? Why should this affect me? There were people who seemed to believe that healthy people should not be inconvenienced in any way to protect the vulnerable. There were policies enacted by leaders in positions of power that were designed to magnify the outbreak in an effort to reach herd immunity with little or no considerations for the vulnerable…

You know, if you think about it too much it is depressing. Enough of that. On to the book!

So, since this is a murder mystery, there is a murder that is associated with the charismatic individual who making this argument and who is heading up the movement. And the murder happens in Three Pines, of course. And there are a plethora of candidates that bring an array of social messages to the situation, and memorable richness to the story. Chief Inspector Gamache is on the case with his team from the Sûreté du Québec, his highly gifted neighbors, and some distinguished visitors. And a duck.

I really am glad I read it.

The Scleroderma Chronicles: The Blue-Lipped Zebra Gets Her Diagnosis!

At last. I mean, this has been going on for more than 5 years and had reached the point of utter absurdity. If you haven’t been keeping up on all of this, I have been struggling with shortness of breath and sporting blue lips for way too long. I also have pretty significant fatigue, chest pain, and major muscle and joint pain. I’m a mess.

I have a rare autoimmune disease called limited system sclerosis(scleroderma) which makes me high risk for lung and heart issues. People with rare diseases are called “zebras” in the medical community; since I’m sporting blue lips I’m the Blue-Lipped Zebra (BLZ). Got that?

My doctors do routine testing to monitor me for heart and lung conditions associated with systemic sclerosis; each time I had an echocardiogram and a high resolution CT scan the results were that I was… fine. No indications of a major problem.

But I was absolutely, positively not fine. I began to refer to the reassurances that all was okay as medical gaslighting. I transferred to new doctors. I got copies of all my test results, did lots of google searches, read research papers and articles in medical journals, and began to have evidence-based discussions with my doctors. They ordered up more aggressive testing of my heart and lungs. I posted about the my right heart catherization and CPET here if you want to catch up.

Last Monday my cardiologist called and gave me the final diagnosis. I have a type of pulmonary hypertension that is exercise-induced that is being complicated by a cardiac shunt in my heart. At rest, for all those previous echocardiograms and CT scans, everything was fine. When I’m in motion it is another story.

So, what exactly is pulmonary hypertension and why am I, as a systemic sclerosis patient, at high risk for it? In the most simple terms, the interiors of my lung arteries are narrowing due to scleroderma scarring and tissue growth; as the openings get smaller, the pressure of blood flowing through the arteries gets higher.

When we exercise the body needs more oxygen delivered to tissues; arteries constrict to raise blood pressure, your heart speeds up and your respiration rate increases. In my case, that constriction of arteries in my lungs makes the blood pressure in the lungs increase too much; blood struggles to get through the pulmonary arteries, and the downstream pressure in my right heart forces blood to flow from the right side, through the shunt, and into the left. My body’s blood pressure zooms up as the left side of the heart fights to push blood out of the heart past the jet of blood coming in from the right side through that dang hole. It’s a catastrophic cascade that happens in seconds, and the entire phenomenon is being driven by my systemic sclerosis created pulmonary hypertension. “You’re a challenging patient,” my cardiologist told me as we talked about my future treatment. Yep. That’s me. A challenge. I excel at challenges.

Last week the new medication that my cardiologist prescribed was shipped overnight express to me by Kaiser’s National Specialty Pharmacy. Kind of unusual, right? That’s because pulmonary hypertension is rare, so there aren’t that many people taking this drug in the US. If I was a Blue-Lipped Zebra before, I am now a BLZ wearing a crown. A periwinkle crown, of course, for pulmonary hypertension.

When I started this scleroderma journey one of my doctors told me that it was good to have a diagnosis, even if it was a shame. This is true. I’ve learned a lot since my first blood tests came back hinting at an auto-immune disease that generated a referral to a rheumatologist.

I’ve learned to be patient. I’ve learned to advocate for myself. I’ve learned to take the initiative to learn about my disease and to become an active participant in my treatment plan. I’ve learned to face down the monster and to go on with my life.

Challenge accepted!

This is Pulmonary Hypertension Awareness month. About 15% of systemic sclerosis patients develop pulmonary hypertension as a consequence of their disease. You can learn more about pulmonary hypertension here.