Yarn, Books & Roses

These are a few of my favorite things…

Hannah is taking the week off, but she would like to remind everyone that they should have a good Caturday. Go outside and listen to the birds! Roll around and coat your fur with some nice dust to take the oil off. Look for a bunny. Demand tuna!! Run wild through the house, chase your brother, and sleep in a sunbeam.

I’m still struggling with fatigue, and even though I’ve been trying to eat iron-rich foods, my doctor has decided that I need supplementation. Ugh. I’ve discovered that iron supplements are pretty much evil. Seriously evil! Like, the awful goes on for at least three days after each supplement, but I am starting to feel better. I sleep better. I have more energy. My GI symptoms are starting to calm down. I’m more mentally alert and have an urge to write. Huh. Anemia. There is another post in here somewhere, but not today. Today is about my happy place, the crafting room.

For some reason that I don’t understand, Hannah has decided that I need to spend all my waking hours in the crafting room. She trills and carries on (like, she scratches the woodwork around the doors to make me come running…) until I come back to the room. She is okay if I’m up and moving about, but if I try to read in bed, she intervenes and makes me get up. Okay. Transferring my reading to the craft room… huh… there is lots of sunlight in this room. I have a little loveseat along with the indoor garden, my loom, and a television, so this is actually a good place to hang out while I’m iron-loading. Did I mention that there is a walk-in closet attached to this room with all things crafting inside? Maybe Hannah knows what she’s doing. Over the last week I’ve been gardening and moving things around, and I realized that I really have made a happy place for myself in this room.

Here’s my loveseat with my emotional support chicken, my knitting, and one of my favorite shawls.

Did you want the links for those knitted objects? Just in case you do, here they are. The sweater is La Prairie by Joji Locatelli. The shawl is another Joji creation called Julie’s Wrap, and here is the link for the Emotional Support Chicken.

Do you see all the popcorns on the edging of Julie’s Wrap? It took FOREVER to make all of those, and you would think that I’d learned my lesson, but noooo…. I went ahead and made those popcorn stitches on the La Prairie. Do I regret this choice each time I come to that row on the chart with the popcorns? Why yes, yes I do. And yet…

Look at how cute they are in this cardigan!!!!

If you commit to knitting this sweater, and it is a serious commitment, you might as well commit to the popcorn. I’m really pleased with how this is looking. I’m into the third color of yarn and can’t wait to get to the fourth one. This is going to be a fun light cardigan later on this year.

Back to the happy things. They have pretty much piled up on the table in the room that usually has my fabric cutting station on it. This is what has moved onto it over the last week or two.

That teddy bear is the one that my son gave me in the ICU after my lung biopsy. He’s wearing a hat that I’ve knit for Frayed Knots donation, and the little zebras are ones that my niece sent to me as happy surprises. The Amazon Echo on the table reads my audible books to me while I knit. Happy. This is happy stuff.

Did you notice the green cat tail in the last photo? Here is the knitted cat, in fun spring colors. He’s propping up my current dragon/octopus books and doing a great job at it, too. Those books make me happy! The watercolor painting in the background is one I bought with a girlfriend at an art sale one perfect fall day in Golden, Colorado. My friend died two years ago, but the memory of her and that perfect day lives on in the painting.

Some of the plants from the indoor garden have overflowed onto this table. (Actually, that’s what set off the rearrangement of happy stuff.) This white orchid is a rebloom on a plant from last year (yay!), and in front of it is one of the new little fig trees. To the right, in a little terrarium that MAKES ME HAPPY is an African violet that is blooming its heart out. Above them you can see a bit of the quilt that my cousin made and sold to me a few years ago. Hey, doesn’t this make you happy too?

If you are interested in knitting your own cat, the pattern is Grey Kitten, Calico Cat by Claire Garland. I think that some more things will be joining this assembly on the table. I have some little statues that were put away because… Hannah… that I can now take out and arrange with the flowers. I have some special skeins of yarn that might be fun to display. Maybe I should focus on weaving a little wall hanging on the loom.

Tomorrow it will snow again, but I will be safely indoors with Hannah in the craft room, embracing the popcorn stitch, and enjoying all the little happy things that have been collected in here that are emblematic of friends, family, favorite knits, and happy memories.

There is a little take-home lesson here somewhere. If you are struggling with extreme fatigue, shortness of breath, and everything hurts, just go with it. Make yourself a happy place. Make something beautiful. Hang out with your cat. Embrace the popcorn stitch. Read in the sunshine.

Don’t forget to take your iron supplement, though, no matter how nasty it is!

Hannah wants me to mention that the Chewy tuna fairy visited us yesterday.

p.s. MR, how could I have forgotten to post the picture of the whole quilt? Here it is, a ribbon winner by my wonderful cousin Ruth Ann. Ya’ll, MR is at Downunder with Boodz and sets me straight whenever I wander from the straight and narrow…

Hannah and the CoalBear: Snow Days, Indoor Gardening

Hi. I’m Hannah.

I’ve been hanging out with the Mother of Cats in the craft room all week.

There was a big snowstorm this week. It just snowed and snowed and snowed and Mateo got more difficult to manage than usual because he was so frustrated…

The snow kept up for so long the Mother of Cats went out and whapped at some tree branches with a stick to make the snow come off. The trees are all okay, so that was good! There was so much snow in the end it was taller than Mateo. Did I mention that he was grumpy and frustrated? He chases me way too much when he is grumpy… Lucky for me the Mother of Cats had just ordered more chirpy toys for him along with a second automated laser light so there is a fresh one for him to play with while the other one is charging. Sometimes the Mother of Cats is kind of smart. Sometimes…

You can see how much snow there was with the bear. When the awful stuff finally stopped coming out of the sky there was almost 15″ of it on the ground. I absolutely refused to go out onto the catio with Mateo the Idiot, but the poor Mother of Cats had to go out to shovel it twice to get the sidewalks and driveway cleared. Poor Mother of Cats.

Mateo went on the catio while she was shoveling, but I’m too smart for that!

Mostly we stayed indoors and knitted away on the new sweater and listened to an audiobook when we weren’t playing with plants (that’s coming up soon…) or suffering in the cold whiteness.

Look at how much sweater got done! The Mother of Cats is listening to The Adventures of Amina Al-Sirafi while working on her La Prairie cardigan. She really likes the book (but so far there hasn’t been even a single octopus in the story…), and she is below the armholes on the sweater and getting ready to start using the third color of yarn. Whew. That is a lot of knitting. I’m a really great support for the Mother of Cats while she’s working. I deserve more tuna for sure!

We also worked a lot with the garden plants this week. The Mother of Cats planted her little fig tree seedlings, and they are looking great.

Now there are 4 new fig trees growing in the upstairs garden with the orchids. Speaking of the orchids, another one started blooming this week!

There are some other projects with plants going on which I don’t understand all that well because… I’m a cat… but the Mother of Cats seems to be really happy with the way they are going. The milkweed seeds came up out of the ground this week and the snapdragon seedlings are so big the Mother of Cats is going to have to put them into bigger pots soon to get them ready to go live out on the deck.

The Mother of Cats was really excited to see the milkweed sprouts, but I think that she is a little silly. She thinks that the milkweed will make butterflies come to the garden, which I guess is good because I like to chase them a lot, but it is hard for them to get into the catio. Maybe she can put some of them in pots on the catio? That would be nice!

She is going to plant some more rose seeds this week (they have been in the refrigerator for 6 weeks) and this time I promise to not knock them down onto the floor, and hopefully there won’t be any nasty mold. She is also trying to get the jade plants to bloom, but so far there isn’t anything happening on the plants. Well, they may be growing more leaves, but that isn’t exactly what the Mother of Cats was hoping for.

Not my jade plants, not my problem. I’ll be more excited when she plants catnip.

This is Hannah, signing off.

>^..^<

Notes from the Mother of Cats: The lung CT scan results came in. I still have lungs. They still look the same as they did 6 months ago: not better, but not significantly worse, and I have less fluid around my heart. I’ll take it!

Murderbot and Octopuses

It has been months since I got sick with the Wannabe Covid and I’m still flirting with long-hauling. Ugh. My fibromyalgia symptoms seem to be better right now, but I’ve become anemic. Fabulous. No wonder I’m so exhausted! The BLZ (blue-lipped zebra) is running wild lately. I spend my nights listening to Murderbot audio books as I try to fall asleep, and lately I’ve been reading books in the daytime that feature… octopuses. Last week the two things, Murderbot and octopuses, began to overlap in my mind.

I guess I need to set the stage a little here. I’ve been interested in octopuses for some time now, and I’ve been reading science fiction books for most of my life. I’ve heard of octopuses who engaged in antics at the aquarium as they snuck out of their aquarium to catch (and eat) the fish in other tanks. There was a news story about a ~~jail~~ aquarium break by an octopus who returned to the ocean via a floor drain. I loved the octopuses in these books when I read them.

Children of Ruin was especially interesting to me because it raised an interesting question: what is intelligent life, and what would it look like. Can it evolve in species already on Earth, and would we recognize it when we saw it? One of the things that always makes me cranky when reading science fiction is… the aliens always share a lot of attributes with humans, and it is a given that intelligent life would evolve specific cultural and technological attributes that mirror our own. Why. Why would that be? Why do we assume that the only yardstick for self-awareness, communication, and cognitive function has to be exactly what we are? Perhaps that is human-centric hubris, and we should look at the world (and space) with better eyes.

Then I read this book last week and I totally went down the Murderbot/Octopus rabbithole.

Do you know Murderbot? Murderbot is a robot/human cloned-tissue construct (corporate owned, of course) that was designed to serve humans as a security/defense tool. It has a failsafe device installed in its brain to control its behavior called the governor module: Murderbot hacked its governor module and is now a free agent trying to figure out what it wants while consuming massive amounts of media. Murderbot is a person, but it doesn’t want to be human. It is its own self, struggling to find its way and purpose (while killing/maiming the occasional bad human along the way) in a universe of heartless megacorporations who abuse human rights and use constructs as disposable tools.

The Mountain in the Sea explores some of these same issues. The book askes the question: What is a person? There are evil megacorporations who abuse the environment and employ human trafficking in their quest to turn a profit: Murderbot would completely understand this world. Even more, the book askes other important questions: What is required to be considered an intelligent species? Language? Tool use? Community and culture? Self-awareness and obvious problem solving? How do we identify and evaluate these?

The Mountain in the Sea has a robot with a brain that passes the Turing Test. Is it a person? What rights should it have? There is an octopus that probably could also pass the Turing Test if there was an octopus version. There is a soldier who provides security for the scientific research facility who utilizes octopus-like technical interfaces in her work. She also hides behind a robot-like translator so she can avoid interacting with the other humans… if she was Murderbot she’d be watching media. There is a scientist who is driven to build a perfect human-like brain, and a scientist who is driven to understand other brains. There are victims of human trafficking, and it is hard to not ask the question, what are the rights that all persons are entitled to? The Mountain in the Sea kind of had it all (if you are a BioGeek struggling with Wannabe-Covid long haul symptoms), and it was the perfect companion to my nocturnal Murderbot audiobooks.

I engaged in a lot of googling to check out information while reading the book. Yes, octopuses really can change their skin color and texture to immediately blend into the background. They really do build cities. They really do have brains that are completely different from our own, and those arms are somewhat autonomous as they interact with the environment. They use tools. You can check out these sources to learn more about octopuses. Octopus 101 and Octopuses Keep Surprising Us.

Late last week I went on an outing and headed into the book store.

If it had an octopus on the cover it pretty much jumped off the shelf and landed into my basket. The dragon got in there too, somehow, but it lives in water too, right? It probably is self-aware and intelligent, right? It’s the Year of the Dragon, right?

But first, I’m reading all the octopus books.

p.s. The Murderbot Diaries is being adapted by Apple TV+ into a series. Yay! Murderbot would be thrilled to know it is becoming streamable media.

p.p.s. Anemia can be a symptom of Covid long-hauling. Seriously, I just wanted to pull my hair out when I saw this article. I was at the low end of normal when I got sick in October, and now my iron (ferritin) level is half of what it was. Wannabe Covid, I hate your guts!

Hannah and the CoalBear: Portly Mouse Caturday

Hi. I’m Hannah.

Did you know that spring is right around the corner?

That’s right. I can tell that spring is coming because there are more birds in the yard now. The robins are back!! There is more sun in the afternoon. The flights of geese over the house seem to have stopped. There are THREE BIG FAT BUNNIES in my backyard!

These bunnies are really big! Mateo the CoalBear and I watch them every late afternoon when they come out into the yard to play. The CoalBear is chomping at the bit to chase them, but so far he hasn’t managed to escape from the catio. The bunnies are also eating the Mother of Cats lawn, but she doesn’t seem to care that much. She’s just happy to see some green grass after the long winter.

Anyway, the Mother of Cats made me this mouse to play with since I can’t go out to chase the bunnies with Mateo.

She stored the mouse in the catnip jar to make it smell good. I’ve been hogging it for myself because that dang CoalBear plays with all the chirpy toys and never, ever lets me have fun with the ping pong balls. He just acts like all the toys belong to him and I never get to play with anything anymore, so this mouse is mine! Besides, it doesn’t chirp, so he isn’t that interested in it, and he doesn’t like catnip.

I eat his tuna when he isn’t looking because he is a total toy hog. It’s only fair, right?

This is Hannah, signing off.

Notes from the Mother of Cats: That portly mouse is made from this pattern on Ravelry. I used same homespun yarn that the chicken is made from, and Hannah seems to be roughing up the mouse more and leaving poor HanPeck along.

I kind of think that this mouse looks like a pika. What do you think?

Image copyright usgs.gov. Downloaded from https://www.usgs.gov/media/images/american-pika-collecting-food on 3/9/24

Welcome the Emotional Support Chicken!

She is done!!

This was a fast, fun project. The entire chicken was knitted in one piece except for the red parts and the underneath section. All garter stitch made it easy on my hands/wrists to knit, and the change in colors helped me keep moving along. Here’s the pattern for the emotional support chicken on Ravelry: I just noticed that there is a tutorial available with the pattern.

The red comb is knitted separately and was quick and easy to attach. The beak was finished in a grand total of about 4 stitches, and then it was pretty straight forward to seam the underneath to the two sides of the body as I closed the chicken. It was amazing how quickly the bird came to life.

The base is nice and wide, letting the chicken sit in place without tipping over.

I really am happy with the final product. This chicken is made solely from homespun yarn, and it makes me even more happy to see this yarn being used well. Here’s the problem with my homespun yarn; it is a little rough on my skin and as a scleroderma patient I’m giving my skin whatever it wants. So… I’m not wearing my homespun anymore, and it is even a little hard to knit with it. The chicken goes quickly, however, and I can have a beautiful, finished chicken to admire and then take a few days to let my fingers recover from the knitting. I’ve already gone stash diving to pull together ideas for another chicken or two or… don’t you think that it would be nice to donate a few emotional support chickens to patients at the infusion center or maybe to Ronald McDonald House? That’s what I’m thinking now. It depends on how well my fingers tolerate the knitting. It makes me so happy to get the homespun out and put to use; each skein and color is a memory, and it makes me feel so good to think of putting them to a good use.

Last night Hannah attacked the chicken and dragged it around, bunny kicking it from time to time. Poor chicken, it was defiantly Hannah pecked.

It is therefore named HanPeck.

Welcome, HanPeck. Hang on, the rest of the flock is on the way.

Hannah and the CoalBear: Chicken Caturday

Hi. I’m Hannah.

Do you see this knitting that is draped over my back? It is the chicken!!!!

So, yesterday the Mother of Cats started knitting away on the Emotional Support Chicken. I don’t know why she needs it, because she has me, right? Anyway, she got going on the knitting and Mateo and I were forced to entertain ourselves FOR HOURS while the Mother of Cats knitted the feathers for the tail of the chicken. Today she attached the two tail pieces together with a crochet hook and then started knitting the back of the chicken. This is what it all looked like.

Look at how big this chicken is going to be! I can wear it for a blanket on really cold days. Maybe it can be made into a little snowsuit for me so I can go outside with Mateo on cold days. I bet that there will be enough extra yarn to make me little snow booties to wear.

Mateo the CoalBear: Hannah should grow fur like me!! I never get cold.

The rest of the stuff that happened this week was playing with the loom. For some reason, the Mother of Cats wouldn’t let me near the yarns while she fixed up the loom for weaving; she was sneaky about when she did her work. The Mother of Cats did most of her stuff with the loom during the afternoons while I was taking a nap. When I got up from my nap all the loose ends of yarn were stuffed into bags attached to the loom so the CoalBear couldn’t get touch them. Here’s what happened while I was snoozing…

The part of the loom with the little slots comes out of the loom, so she sat on the loveseat while she threaded all the little yarns through the reed using a special little hook called a sley hook. Later Mateo dragged it off to play with it downstairs, but she was calm about it because she has two of these hooks. I’m pretty sure that she will find the hook that Mateo took eventually. Then she had to thread all the yarns through the little metal holders in the loom (the heddles) and finally she got everything wound up and started weaving. She made a few different starts with the weaving while she was working out the tension on the threads, but now she thinks that she is good to go. It is going to look kind of cool when she makes better progress because the yarn will keep changing colors while she works back and forth. Next up it starts to turn to grey.

So that’s it. The whole week. Tomorow we’re going to get more of the chicken done. I can’t wait!!

This is Mateo the CoalBear, signing off for Hannah who is asleep again.

Note from the Mother of Cats: March is the month that Hannah was born in 2020. This is what she looked like the first time I saw her in the animal shelter.

She was the last kitten in the room as she had been returned to the shelter after her first adoption didn’t work out. She evidently cried all night, so they returned her. How very lucky for me that they did.

I Need an Emotional Support Chicken!! (and a bunch of other stuff…)

I’ve been doing really well this year with knitting out the stash. So far, I’ve finished 19 hats and 4 PICC line covers and am well on pace to meet the goal of 50 donated hats this year. So… I should be able to take a break and get some stuff finished up and maybe I can start a new project or two. That sounds completely reasonable, right? I cleaned out my yarn stash a couple of weeks ago and came across a bin of homespun yarns and roving that I’ve been saving for ages… The minute I saw it, I knew that it had to be an emotional support chicken.

This is an emotional support chicken, in case you haven’t been keeping up with the latest patterns trending on Ravelry.

Doesn’t that chicken look great? Don’t you think a rustic homespun yarn will be just perfect for it? The chicken will need some great solid colored yarn for the stripes, and the minute I opened the storage bin and looked inside I knew that I had my chicken.

Look at that yarn!! It is marled looking because it was spun from some roving that I got on a field trip to a yarn mill. At the end of the month the mill gathered up all the bits and pieces of fiber that they had leftover and made a run combining them into this roving that I just loved and bought a pound of. The roving had mystery fibers (I’m pretty sure there is alpaca in there…) in cream, tan, brown and black with a little pink here and there. It was wonderful to spin, and I have 4 skeins of the yarn and more roving right now. Chicken yarn!!

This pink will look great on the chicken! I bet you never suspected that it is dog yarn, as in husky dogs.

I’m pretty sure that I am going to use this pink too. Do you see how fluffy the yarn is? That’s because it is spun from husky down blended with wool. (Yes, a coworker brought in bags of husky down from her dogs for me to spin. I kept some for myself.) I’m excited to find a project to use these yarns that I’ve been keeping for quite a while, and what a great way to keep using up the stash. I’m thinking that I have other homespun yarns that will make great chickens too.

Once I bought and downloaded the chicken pattern it was like the floodgates had opened. I have seen several sweaters that I would love to knit and I’m chomping at the bit to buy yarn for them. (NO, NO!! I tell myself. Must use stash!)

I took a look at this book on Amazon as it was one included in my unlimited subscription. Hey, there are lots of great patterns and they can all be adapted to fingerless gloves and wrist warmers. SOOOO CUTE!!! I found the size needle that I needed to do these, and I’m pretty darn sure that I have the yarn in the stash to make lots of cute mitts to wear and gift. The hard copy of the book is slowly (very slowly) making its way to me. At the rate it is moving the chicken may be done before it gets here.

Then I saw the latest edition of The Knitter magazine (also in my Amazon unlimited subscription) and there are two sweaters that I want. Maybe it is the color. You have to admit, that is a fabulous raspberry color in those sweaters. I’ve already tracked down the colors online and I really, really want to buy, but so far I’ve managed to not pull the trigger on the online sales. Stash. Must knit the stash… I need to find a hard copy of this magazine.

Then this appeared on Ravelry. When will it ever end…

Look at that sweater. That sweater is beyond cute (but not as cute as the chicken, you must admit!!) I probably do have the yarn to make this sweater in the stash. I must stash dive right away!!!! I need a Renaissance sweater.

And so it goes. My knitting mojo is back big time, and I am on fire to create beautiful things from the yarn I have. I also pulled out the sweater that has been hibernating for the last few months and I’m ready to get going on it again too.

Sorry hats. You are now paused for a few weeks while I fall down the chicken homespun rabbit hole, and if a couple of sweaters happen while I’m down there, that’s cool too.

My La Prairie by Joji Locatelli is one of the sweaters that I plan to get done while I’m playing with chickens.

The Scleroderma Chronicles: Rare Disease Day 2024

Rare Disease Day is tomorrow, but since I’m going in for a lung scan on the 29th, I thought I would post this now.

Well, here it is again. Rare Disease Day. This is my 9th year posting about rare diseases: on August 28, 2014, I was diagnosed with a form of scleroderma called limited systemic sclerosis. This condition, autoimmune in nature, is progressive as multiple organs, blood vessels, and the skin of the patient (that would be me) stiffen and harden due to scarring (fibrosis). It is also considered rare, since fewer than 200,000 people in the US are currently diagnosed with it.

So, what’s up with the zebra? Well… in the medical community doctors and other health professionals are trained to focus on the most common cause for the symptoms that they are seeing in their patient. The saying goes: when you hear hoofbeats, think of horses, not zebras. Certainly, that makes a lot of sense in terms of patient care and cost control. It works most of the time.

Unless, of course, you are a zebra.

Life is challenging if you are a zebra in a herd of horses. Doctors screen for the most likely cause of reported symptoms, and then when those tests are negative, you usually get told that you are fine, and then you are pawned off with some pablum like… do these exercises… try to reduce stress…would you like anti-depressants?… Seriously, it is pretty crushing as you start to wonder if you are just an attention-seeking hypochondriac since for the most part you look great. In my case, I didn’t even appear to be aging…

This can go on for years. And years. Autoimmune conditions like mine tend to send patients with vague complaints (I hurt all over…) to the doctor’s office looking for help. Some of the symptoms can be so subtle that you just don’t think to mention them to the doctor because you already feel pretty defensive about complaining after a few borderline disparaging interactions in the past. Why mention that you have trouble swallowing sometimes? Or that your arm is starting to look like Flipper the dolphin in appearance and texture? Some new red freckles have shown up on your face, but why mention them when you really want to get to the bottom of why you hurt all over and what is up with this fatigue????? Sure, there were those carpal tunnel surgeries 10 years ago, and the hospitalization for gastritis last year, but why would you mention them… When I was finally diagnosed, I discovered that I was absolutely classic and presented with all five of the CREST features of limited systemic sclerosis. Oh, one more thing: lack of wrinkles is a red flag for scleroderma…

You can see two of the CREST characteristics here. I’ve lost circulation in my ring finger as a result of Raynaud’s, and the thick (sausage-like) fingers that are trying to contract are examples of sclerodactyly. The other distinguishing symptoms are trouble swallowing, lumps of calcium deposits on some of my bones, and those pesky red freckles that are now appearing everywhere. It was official: I was a zebra. There are a lot of us.

Rare diseases are also known as orphan diseases. They are poorly supported and most of the time there is no treatment. After failing a chemotherapy drug, I was moved to an off-label treatment using an immunosuppressant drug developed for kidney transplant patients. It was hard to get the drug as it was declined by my insurance, then the appeal failed, my doctor filed another appeal, and I went to see the pharmacist with a pathology report showing extreme gastritis. It was a fight, but I got the drug. This drug, Myfortic (mycophenolic acid), has proven to be so effective in slowing disease progression that it is now approved for systemic sclerosis and is a drug of choice along with its close relative CellCept. It has been doing a pretty good job at slowing things down; at the time of my diagnosis the 10-year survival rate was about 50%. Now that there are some better treatment options the survival numbers have improved: 10-year survival is up to 70%.

Two years ago, I developed two of the more serious complications of systemic sclerosis (SSc): pulmonary hypertension and interstitial lung disease: two more rare diseases. Not good news at all; my pulmonologist told me it would be okay to cry as he showed me my lung scans and gave me the bad news. Remember that little word “progressive” that I used to describe SSc? This is disease progression; the inflammation and formation of scar tissue (fibrosis) had hit my lungs and heart, and my have doctors responded with big time drugs. Yes. Big time and pretty expensive drugs. Over the last few years, literally in the time since I was first diagnosed, drugs have appeared that can greatly improve treatment and life expectancy in patients like me, and there are more drugs in the pipeline.

The first drug that can be used to directly treat SSc just moved from orphan drug status to the fast track. This is serious, serious good news. I looked into entering a clinical trial for this drug, but my doctors thought that I wasn’t a good candidate because I have too many complications right now. Seriously, I have been slotted into a diagnosis called SSc-ILD with PH which means that I am a SSc patient with interstitial lung disease and pulmonary hypertension. Good grief, I’m now a walking bundle of acronyms. That’s okay. I can hang on, help is on the way!! FT011, I am waiting for you!!!

So, what is up with all the colored stripes?

Serious medical conditions usually have an awareness ribbon color. It is a little cheesy, but if you are dealing with scary stuff, why not have some fun? Be a zebra, color your stripes in your awareness colors, and get yourself some fun t-shirts while you are at it. Eat Zebra Food (that would be black and white striped caramel popcorn to you non-zebras), get colored medical bracelets, and collect the stuffed animals. Zebras, of course!! My zebra has teal stripes (scleroderma), periwinkle stripes (PH) and purple for the ILD. Lung disease in general is green and blue. I also get purple for my Sjogren’s and fibromyalgia, and don’t forget the red for my heart failure. I’m a rainbow zebra!! Yay!

Okay, time to get serious. What is Rare Disease Day about? Raising awareness in the public about the challenges of living with a rare disease. There are a lot of people who have rare diseases, so by sharing our faces and voices the hope is that it will help make us more visible. We hope that a more educated public will aid in the diagnosis of others with rare conditions. (See above; diagnosis can take years. It would be wonderful if that could be sped up a little…) We hope it will help with funding for drugs, treatments, and maybe even cures. We hope that for those with invisible conditions, they will become more visible and supported. We hope.

To learn more about my rare conditions and others you can go to:

To everyone who battles on against scleroderma or any other serious medical condition, rare or not, I see you. Hugs! Shine on, my friends, shine on!

Hannah and the CoalBear: The CaterSunday Report

Hi. I’m Hannah.

Chewy brought me more TUNA and this crunchy paper this week. How awesome is that?

The Mother of Cats was busy yesterday shopping and cooking and reading and stuff, so I’m finally getting the news of the week out today. It’s CaturSunday. That works, right?

The Mother of Cats brought a little loom into the craft room and Mateo and I have been checking it out. It’s kind of strange, don’t you think?

Can you see it on the table behind the chair? Mateo has been whapping at the metal heddles on the loom because he likes the sound.

The Mother of Cats wound some yarn out to make the warp, and I helped her with all of that. I’m such a good girl.

Yesterday she cut the warp off of the warping board (that’s the wooden thingy with the pegs) and put it all into a bag to keep it safe from me. Why would she do something like that? How am I going to learn how to weave when she doesn’t share her toys? Anyway… when we finally start weaving I’ll give you another update.

The Mother of Cats also spent some time knitting this week. She made another Alpine Bloom hat in fingering weight yarn to give away to the Kaiser infusion center, but this time it is shorter. Here’s the tall hat next to the shorter one.

Can you see the difference? The Mother of Cats has enough yarn to make another one of these hats, so she just started another one.

The leaves at the bottom of the flower are chopped off in the smaller hat, but the Mother of Cats says that it fits her head better. I think that she should make a really small one for me, don’t you think that would be cute? She would have to something to let my ears out of the hats, though.

This is me on top of the new hat while it was blocking. She put a towel on top of the hat, but I can still smell the wet wool. Don’t you just love the smell of wet wool in the morning?

Finally, I should give you the latest updates on the plant experiments that the Mother of Cats has been conducting around the house. Hold on to your whiskers, here they come!

The rose seeds got moldy. Goodbye, rose seeds.

Luckily there are more rose seeds chilling in the refrigerator and the Mother of Cats plans to try again in a few weeks.

The snapdragon seeds came up and are doing great!!

There was a fig tree in the front room that was growing really tall and thin. It was growing crooked and looked kind of silly. The Mother of Cats wasn’t sure what to do with it, but finally decided to CUT IT OFF to take the top two-thirds of the tree off with the thought that it might bush out some. She took some cuttings off the branches of the ~~killed~~ chopped tree and put them in the orchid garden to see if they would grow some roots.

Do you see the beginning of the little roots on the seedlings? Yay! Next she will try to move two of the rooted cutting to dirt to see if they continue to do well. What will she do with all these trees if they keep growing? Sometimes I worry about the Mother of Cats.

Finally, there is the milkweed seeds. Remember them? Mateo and I check on them every time we are out on the catio, because they are outside in milk cartons hanging out in the cold.

The iris plant has shoots coming up, but so far, the milkweed seeds are still asleep.

Well, that’s all I have to say for today. That was a lot of updates, huh. I’m pretty sure that I need some TUNA to keep my strength up.

This is Hannah, signing off.

Note from the Mother of Cats: I modified the Alpine Bloom pattern to use fingering yarn. You can see my project notes here.

Hannah and the CoalBear: Reporting In

Hi. I’m Hannah.

This is just a fast check in to let you know what has been going on the last couple of weeks. First of all, I want to mention that the Mother of Cats has been going away in the car WAY TOO MUCH lately. I mean, she should always be here to play with me and WHAT IF I HAVE A TUNA EMERGENCY??? Seriously, she needs to take her responsibilities and duties a little more seriously.

Mateo would like me to mention that it has been snowing almost every single weekend this year. He no longer things that it is amusing. The Mother of Cats should do something about this, too.

The Mother of Cats has also been reading in bed (but I try to put a stop to that whenever I can) and knitting her little hats. This weekend she drove to her knitting group to turn in the hats that she has knitted this year to date: there are 16 of them!

The Mother of Cats also got six PICC line covers knitted; she donated them along with the hats on Saturday. She filled a big bin with shawls and socks and cowls that she doesn’t wear anymore and took that with her too; they were all donated to a refugee assistance organization. She’s happy to put the knitted stuff to good use, and I’m so happy to have an empty shelf in the closet to hide from Mateo on. The Mother of Cats even put a cat bed on the shelf for me to use. As long as Mateo doesn’t find my secret hiding spot, I’m going to have long naps without any annoying interference from that CoalBear!

We got cute little African violets for Valentine’s day along with a little pink zebra. Mateo thinks that the zebra is for him and he bunny kicks it, but I know that the zebra is really mine!!

Well, I think that’s all I have to share for now. I do want to mention that it is sunny most mornings of the week and I’m really enjoying sunshine again. It makes me shed! I just love getting combed with the grooming brush. Mateo, not so much!

I look a little like the cat quilt on the wall behind me…

This is Hannah, signing off.

>^..^<

Notes from the Mother of Cats:

The pattern for the hats is Barley DK by Tin Can Knits.
I knit for Frayed Knots, a Denver-area community knitting group. These wonderful ladies also provide services to the homeless/refugee communities in our area along with the many items produced for local hospitals and cancer centers.
I’m making the rounds to doctors again and getting testing done. I’m still really struggling with fatigue, pain, and shortness of breath; my lips are bluer than ever. Initial testing results show that I’ve developed anemia. It is an unusual type; I have enough red blood cells, but they are too small and don’t have enough hemoglobin. Next up… more testing!
No wonder I’m always exhausted!