What a beautiful morning! My backyard filled with birdsong early and the cats began clamoring to be let out, so I got up, made a latte, and joined everyone in the early sunshine. It’s too soon for flowers (except dandelions which are now in full bloom!), but the promise of summer is there for the taking. My trees are blooming and there are little buds where the leaves are getting ready to burst out. It’s hard to not get a little excited.
I took advantage of the light to get knitting pictures. I finished a shawl over the weekend. Here it is:
Now that I have one of the two shawls that I am working on finished I felt that it was OK to cast on the April 2015 sock. Here she is!
It was a really great week for me knitting-wise. I even coated myself with the best sunscreen on the market (SPF 60!!) and went out and planted my new roses. There were a lot of positives for the week except for… my scleroderma decided to kick my butt. My leg muscles now hurt, my knees have become swollen, red and warm to the touch, and I’m dizzy in the mornings. I have edema in my arms and legs. What is up with that!! My rheumatologist gave me some drug information to read (I get to pick which drug I prefer of two possibilities. This sounds pretty good, but during the week I realized that these are chemo drugs that I will be taking at a lower dose than cancer patients get. Bummer!) Still, I was having a happy week and being positive until one of my neighbors stopped by to talk to me while I was planting the roses, and he mentioned that if I would get out more often to exercise and get sunshine I would “get well”.
He meant to be encouraging. He’s really not all that bright; he doesn’t get “chronic”. I was polite, but once I got back into the house I was ready to rant. Don’t tell chronically ill people that they can “get well” if they just change their diet, get more exercise, meditate, get off gluten, take vitamins, or whatever else occurs to you. It’s almost like suggesting that it is their fault that they are sick. I know that while it is human nature to want people to “get well”; it is insensitive to suggest that this is within the power of the person who is dealing with a disabling, progressive and incurable disease.
On the other hand, I need to pick a drug. Once I calmed down I e-mailed the doctor to let him know that CellCept sounded pretty good. Some scleroderma patients in forums are claiming to be in remission. That sounds pretty good to me. The downside? No more sunshine for me until I’m off again.
Midnight gardening? I can do it!!