The Scleroderma Chronicles: The Blue-Lipped Zebra Gets a Credible Hypothesis

At last. If you have forgotten about the tales of the Blue-Lipped Zebra, that’s what I’ve taken to calling myself as I struggled over the last few years for some definitive answers to my blue-lipped shortness-of-breath issues. Really, things got pretty darn extreme late in 2019 and I started to get really pushy in finding … Continue reading “The Scleroderma Chronicles: The Blue-Lipped Zebra Gets a Credible Hypothesis”

The Scleroderma Chronicles: The Blue-Lipped Zebra Goes On Oxygen

This week I finished up the pulmonary tests to see what was up with my lungs. This was pretty darn stressful and the poor BLZ was just besides itself with the trauma of walking into a major hospital to get admitted for outpatient testing. I was brave. On the day my state opened up the … Continue reading “The Scleroderma Chronicles: The Blue-Lipped Zebra Goes On Oxygen”

The Scleroderma Chronicles: The Blue-Lipped Zebra gets some MRIs

I feel like I am in a race now. I absolutely, positively need some answers to all of my little medical issues, but I have to hurry, hurry, hurry because the Covid-19 virus is already in my state and I think that in just a matter of days or weeks the health care machine is … Continue reading “The Scleroderma Chronicles: The Blue-Lipped Zebra gets some MRIs”

The Scleroderma Chronicles: The Blue-Lipped Zebra Report!

I’m thinking of myself as the “Blue-Lipped Zebra” these days. Let’s just call me the BLZ for short. You know, a rare breed of difficult patient who is ornery, persistent, and stubbornly insistent on getting straight answers. I’m trying to not use that zebra voice, but if pushed I may whip it out. I’m going … Continue reading “The Scleroderma Chronicles: The Blue-Lipped Zebra Report!”

The Scleroderma Chronicles: An Autoimmune Zebra

“When you hear hoofbeats, think of horses, not zebras.”  ~medical school proverb Zebra ~medical slang for an exotic medical diagnosis As a teenager I struggled with eczema and was photosensitive; I was started on steroids, told to wear long sleeves, and to stay out of the sun. Without a clear cause for my eczema/rash I … Continue reading “The Scleroderma Chronicles: An Autoimmune Zebra”

The Saturday Update: Week 19

It’s already the first week in May: how crazy is that?! The days are just kind of flying by now as the sun is getting brighter outside and I have the energy to get lots of little chores done. I’ve been cleaning: the garage, the bookshelves, the craft room, and then I weeded out gardens. … Continue reading “The Saturday Update: Week 19”

The Saturday Update: Weeks 17 and 18

Life has just been kicking my butt for the last few weeks. I have been insanely busy and struggling with my health. I need to write a whole different post (from the Blue-Lipped Zebra) to talk about what’s happening, but the short version is… we are closing in on the cause of my blue-faced breathlessness … Continue reading “The Saturday Update: Weeks 17 and 18”

The Saturday Update: Week 16, 2021

What a week it has been! I managed to get to 4 medical appointments on 4 different days which used up a lot of my available energy and time, but now that I’m vaccinated I have turned the Blue-Lipped Zebra loose again and it is absolutely determined to get to the bottom of what is … Continue reading “The Saturday Update: Week 16, 2021”

The Saturday Update: Weeks 49 & 50

What a shock to write down week 50! I have to admit that it is kind of a thrill to get towards the end of this most eventful (and not in a good way) year at last, but it is a reminder of all that I need to get done before the holidays are upon … Continue reading “The Saturday Update: Weeks 49 & 50”

The Saturday Update: Week 10

This week I have been really busy with appointments and testing. I wrote about the first round of doctor’s appointments in this earlier post (The Blue-Lipped Zebra Report) where I also showed off my fabulous monster orchid in bloom and a pair of finished socks. I finished the week with an echocardiogram and two MRI … Continue reading “The Saturday Update: Week 10”