The Scleroderma Chronicles: The Blue-Lipped Zebra Gets Her Diagnosis!

At last. I mean, this has been going on for more than 5 years and had reached the point of utter absurdity. If you haven’t been keeping up on all of this, I have been struggling with shortness of breath and sporting blue lips for way too long. I also have pretty significant fatigue, chest … Continue reading “The Scleroderma Chronicles: The Blue-Lipped Zebra Gets Her Diagnosis!”

The Scleroderma Chronicles: The Blue-Lipped Zebra Gets a Credible Hypothesis

At last. If you have forgotten about the tales of the Blue-Lipped Zebra, that’s what I’ve taken to calling myself as I struggled over the last few years for some definitive answers to my blue-lipped shortness-of-breath issues. Really, things got pretty darn extreme late in 2019 and I started to get really pushy in finding … Continue reading “The Scleroderma Chronicles: The Blue-Lipped Zebra Gets a Credible Hypothesis”

The Scleroderma Chronicles: The Blue-Lipped Zebra Goes On Oxygen

This week I finished up the pulmonary tests to see what was up with my lungs. This was pretty darn stressful and the poor BLZ was just besides itself with the trauma of walking into a major hospital to get admitted for outpatient testing. I was brave. On the day my state opened up the … Continue reading “The Scleroderma Chronicles: The Blue-Lipped Zebra Goes On Oxygen”

The Scleroderma Chronicles: The Blue-Lipped Zebra gets some MRIs

I feel like I am in a race now. I absolutely, positively need some answers to all of my little medical issues, but I have to hurry, hurry, hurry because the Covid-19 virus is already in my state and I think that in just a matter of days or weeks the health care machine is … Continue reading “The Scleroderma Chronicles: The Blue-Lipped Zebra gets some MRIs”

The Scleroderma Chronicles: The Blue-Lipped Zebra Report!

I’m thinking of myself as the “Blue-Lipped Zebra” these days. Let’s just call me the BLZ for short. You know, a rare breed of difficult patient who is ornery, persistent, and stubbornly insistent on getting straight answers. I’m trying to not use that zebra voice, but if pushed I may whip it out. I’m going … Continue reading “The Scleroderma Chronicles: The Blue-Lipped Zebra Report!”

The Scleroderma Chronicles: An Autoimmune Zebra

“When you hear hoofbeats, think of horses, not zebras.”  ~medical school proverb Zebra ~medical slang for an exotic medical diagnosis As a teenager I struggled with eczema and was photosensitive; I was started on steroids, told to wear long sleeves, and to stay out of the sun. Without a clear cause for my eczema/rash I … Continue reading “The Scleroderma Chronicles: An Autoimmune Zebra”

The Saturday Update: Week 28, 2021

The weekend was busy and I am running late, but there is so much going on I thought that I should get my update entry out there so that next week’s edition doesn’t grow to completely unmanageable proportions. It’s a plan, anyway. I had appointments every single day last week, and two on Friday. I … Continue reading “The Saturday Update: Week 28, 2021”

The Saturday Update: Week 19

It’s already the first week in May: how crazy is that?! The days are just kind of flying by now as the sun is getting brighter outside and I have the energy to get lots of little chores done. I’ve been cleaning: the garage, the bookshelves, the craft room, and then I weeded out gardens. … Continue reading “The Saturday Update: Week 19”

The Saturday Update: Weeks 35 and 36, 2021

The heat is hanging on and the cats and I are totally over it at this point. Yesterday we set a new heat record in my state: 99 degrees Fahrenheit. The sun is a sullen red ball in the sky and the sky is slate white with smoke from the west. The heat is unrelenting, … Continue reading “The Saturday Update: Weeks 35 and 36, 2021”

The Scleroderma Chronicles: A Trip to the Cath Lab

The BLZ has been waiting a long time for this… Five years ago I came down with the flu and ended up in Urgent Care struggling to breathe. I scored some antibiotics, steroids, and cough medicine. To fight the virus I was told to go off my immunosuppressant drugs for a few weeks until I … Continue reading “The Scleroderma Chronicles: A Trip to the Cath Lab”